Hike 4 CMT

Our 17 year old son Keenan was diagnosed with CMT 4C when he was 15 years old after years of continual new health issues and medical appointments with various specialists. We average 2-3 medical appointments per week including regular physical therapy. Unfortunately this means missed school and other opportunities as we are constantly balancing the medical realities with living a full and fulfilling life. Despite the exhaustion, heartache and unpredictable nature of a progressive neurological disease, we live our lives to the fullest. Keenan is a bright curious senior in high school. He enjoys physics, computer programming, robotics, creating you tube videos, playing piano and spending time with friends and family. It would be a miracle to stop the progression of this disease while Keenan is young. Project Foresee – a gene therapy cure is the most promising pathway for this cause.Join us in support of Keenan’s fundraiser for PROJECT FORESEE-A PATH TO CURE CMT4C.To learn more about 4C research, please visit CMTA’s 4C research page.

Event Details

Sunday, September 21, 2025.

10:00 a.m. – 3:00 p.m.

Padre Picnic Area

Tilden Park, Off South Park Drive

Schedule of Events

10-10:30 Registration at Padre Picnic Area. Get your trail map and free t-shirt

10:15-12:00 Moderate 5K trail loop (some hills involved) but you don’t have to do it all

12-2 Tacos and drinks by Dos Raicez Catering

2-3 Silent auction and wrap up

Can’t go but wish to support the Hike 4 CMT 4C? Donate today!

If you prefer to donate via check, Donor Advised Fund grant, or other, please communicate that your donation is to be directed to “Hike 4 CMT 4C.” Checks can be mailed to: Charcot-Marie-Tooth Association PO Box 105 Glenolden, PA 19036

The Charcot-Marie-Tooth Association (CMTA) is a registered 501(c)(3) nonprofit organization. Your donation is tax-deductible to the fullest extent allowed by law. Tax ID: 22-2480896.

Page Last Updated: July 10, 2025