Shelbi Ritter: “Trust your gut!”

After 12 long years and four different neurologists, Shelbi Ritter was diagnosed with CMT1E. During this process, Shelbi’s parents, Crystal and Ben, grew frustrated with the lack of answers.
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Dr. Katherine Forsey and her 7 year-old son, Samson

Dr Katherine Forsey, the CMTA’s new Chief Research Officer, shares her story of a recent hospital visit as a CMT mum. Katherine and her 7 year-old son, Samson, have CMT1A.
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I wish I didn’t have CMT, but I would not be who I am without it.

I’m Karen, and I have CMT 1A. I grew up in northern West Virginia and have since lived in North Carolina, California, Arkansas, and now Arizona.
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Lia O’Sullivan: “I’m ok!”

My daughter Lia, now 7 years old, was diagnosed with Charcot-Marie-Tooth disease at the age of 2.
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My Son Cache

My 10-year-old son Cache is charming, competitive, tenacious, funny and thoughtful. He lights up a room when he enters it and leaves a smile behind when he goes.
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Cynthia Lawrence

Disney Princess and Athlete Cynthia Lawrence

In 2015, I ran the race of my life—the Disney Princess Half Marathon. I didn’t realize it then, but it may have been my last race. My ankle started bothering me when I was training …
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James Cuizon

James Cuizon, Ironman

James Cuizon is a busy guy. Diagnosed with CMT Type X when he was 20 years old, James currently works as the executive director of a large nonprofit organization, works part-time for another non-profit and …
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Chelsea Singer

Chelsea Singer, Yoga Instructor

Growing up in Michigan, Chelsea Singer did not realize her feet were misshapen. She thought she was just growing faster than everyone else. She wasn’t diagnosed with CMT until the age of 11, when her …
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Heather Hawk Frank

Heather Hawk Frank, Cleveland, OH CMTA Branch Leader

When Heather Hawk Frank was a child, her dad noticed she wasn’t progressing like other kids.
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Jonah Berger

Jonah Berger, CMTA Advisory Board Member

How to Talk About CMT. It is one thing to travel through this life with the unstable feet and uncertain balance of CMT. It is another thing altogether to share that experience with others. In fact, …
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