I wish I didn’t have CMT, but I would not be who I am without it.
I’m Karen, and I have CMT 1A. I grew up in northern West Virginia and have since lived in North Carolina, California, Arkansas, and now Arizona.Read More
Lia O’Sullivan: “I’m ok!”
My daughter Lia, now 7 years old, was diagnosed with Charcot-Marie-Tooth disease at the age of 2.Read More
My Son Cache
My 10-year-old son Cache is charming, competitive, tenacious, funny and thoughtful. He lights up a room when he enters it and leaves a smile behind when he goes.Read More
Karen Brown, CMTAthlete
The moment I crawled, braceless, out of the sandy-bottomed channel where I’d just completed a 200-yard open-water swim was the moment I became a triathlete.Read More
Disney Princess and Athlete Cynthia Lawrence
In 2015, I ran the race of my life—the Disney Princess Half Marathon. I didn’t realize it then, but it may have been my last race. My ankle started bothering me when I was training …Read More
Anthony Zahn, Paralympian
Anthony Zahn played soccer in kindergarten, but he wasn’t great at it. As a freshman in high school, he tried to play football, but his knees hurt so badly he had to quit. At 15, …Read More
James Cuizon, Ironman
James Cuizon is a busy guy. Diagnosed with CMT Type X when he was 20 years old, James currently works as the executive director of a large nonprofit organization, works part-time for another non-profit and …Read More
Chelsea Singer, Yoga Instructor
Growing up in Michigan, Chelsea Singer did not realize her feet were misshapen. She thought she was just growing faster than everyone else. She wasn’t diagnosed with CMT until the age of 11, when her …Read More
Heather Hawk Frank, Cleveland, OH CMTA Branch Leader
When Heather Hawk Frank was a child, her dad noticed she wasn’t progressing like other kids.Read More
Jonah Berger, CMTA Advisory Board Member
How to Talk About CMT. It is one thing to travel through this life with the unstable feet and uncertain balance of CMT. It is another thing altogether to share that experience with others. In fact, …Read More