CMTA Youth Program

Welcome to the CMTA Youth Program!

This is the place to get connected to other youth with CMT and to learn all about our programs!

The main goal of the CMTA Youth Program is three-fold:

  1. To connect the youth of the CMT community with one another, providing them support, encouragement, understanding and inspiration from other youth
  2. To educate, encourage, and involve CMT youth in fundraising for their cause, giving them a sense of empowerment-being part of the change, not just waiting for it
  3. To give the youth of the CMT community a voice—a chance to introduce the youth to the community in their own words and, in the process, nurture future leadership of the CMTA
CMTA Youth Program

Sign up today to join us and get involved!


For any questions, please contact Jonah Berger, National Youth Programs Manager at


CMTA Youth Fundraising

The CMTA Youth Movement is getting into the fundraising game! In 2021, we will be holding three community-wide fundraisers and training many of the youth to hold their own fundraisers as well. Watch the video from the committee members to learn more, and then download your fundraising kit. Together, we will help to raise the money needed to cure CMT!



CMTA Camp Footprint

The CMTA’s Camp Footprint is the only camp in the United States just for kids with CMT! It is an annual, FREE, six-day sleepaway camp for youth (ages 10-18) with CMT. Camp Footprint empowers youth with CMT with the courage, hope, skills and community for a lifelong journey of realizing potential and developing strengths.

An activity-driven week dedicated to exploration and creativity, Camp Footprint is all about building confidence and community! Camp is an unforgettable week of adventure and fun with friends, and our campers make lifelong friendships based on shared experiences and understanding.

Registration for CMTA Camp Footprint 2021 opens Tuesday, January 5, 2021.


CMTA Youth Hangouts

After such a successful Virtual Camp Footprint experience, we have decided to keep the youth connected throughout the year, and every few months we will be scheduling a Zoom Hangout!

These events are open to ALL youth who have CMT from ages 10-21. Come join us for an evening of community, fun, and friendship! Can’t wait to Hangout soon!

Next Hangout: Sunday, April 25, 2021

The CMTA Youth Program is thrilled to announce the next quarterly YOUTH ZOOM HANGOUT!

The meeting will be held on Sunday, April25, at 7:00 pm ET for 90 minutes.

Once registered, the CMTA will email you a link to join the video meeting. The CMTA will be using ZOOM video meeting software for these events. You do not need to install ZOOM software but internet access is required



CMTA Youth Council

How do I get involved in the CMTA Youth Council? How can I help empower the youth? What can I do to make a difference? If you have ever asked yourself these questions, you have come to the right place! We can’t wait to work with you and together empower the youth living with CMT. Learn more and find out how you can get involved.



Find us on Facebook at


Follow us on Instagram @cmtayouth


CMTA College Guide Book

The search for a college is not simple and it’s not made any easier by having a physical disability. Written by CMTer and former college student Yohan Bouchard, A Guide to Surviving College for CMTers will provide you with big help in navigating your way through college.

Coming in the Spring of 2021, The Book of Dreams will be an amazing book brought to you by the Youth of the CMTA. It will chronicle the experiences and emotions of over 70 kids with CMT worldwide. It’s going to be a wonderful addition to your bookshelf!