Amy J. Gray
Chief Executive Officer
Amy leads the CMTA with more than two decades of extensive fundraising and management experience. Her expertise in fundraising, staff development, financial and operational management, strategic planning and community engagement have been shaped by her roles working with three national voluntary health organizations.
The CMTA has grown substantially since Amy took over as CEO in May 2017. She has worked closely with the board of directors and key stakeholders to establish aggressive fundraising efforts to support new research initiatives and community programs. Under her leadership, the organization has expanded its Strategy to Accelerate Research and Center of Excellence Network, launched Patients as Partners in Research, gone through a rebranding effort and the launch of a new website. In addition, the Foundation earned a 4-star charity rating from Charity Navigator and a Platinum Seal of Transparency from GuideStar.
Amy plays an important role both nationally and internationally advocating for the CMT community. She serves as the appointed CMT patient advocacy leader on the NIH’s Rare Disease Consortium Research Network steering committee, and she is a committee member of TREAT-Neuromuscular Disease International Consortium. In addition, she has been asked to speak at conferences such as Global Genes, the World Orphan Drug Conference and Launch Bio on the CMTA’s Strategy to Accelerate Research and the importance of patient engagement in the drug development process.
Before joining the CMTA, Amy was the senior vice president of constituent and community relations for the Parkinson’s Foundation (PF), responsible for providing the overall leadership, strategy and vision for the foundation’s fundraising efforts and network of chapters. She joined the Foundation in 2013 in the role of vice president of chapter relations and community partnerships to oversee the nationwide network of affiliate chapters in organizational, mission, board and fund development activities. In 2014, she led the foundation through the process of integrating the chapters and headquarters into one organization. In 2016, she played a critical leadership role on the transition team in the merger between the National Parkinson Foundation and Parkinson’s Disease Foundation, the two legacy organizations that later became the Parkinson’s Foundation.
Before joining the PF, Amy served in executive roles at the Crohn’s & Colitis Foundation of America and the Muscular Dystrophy Association. In these roles, she successfully built strong chapters and robust relationships with donors, volunteer leaders and key stakeholders.
Amy is a graduate of St. Cloud State University in Minnesota and lives in South Florida with her husband and children.
Director of Finance and Administration
Kim has the distinction of being the CMTA’s longest-serving employee. She started at what was then a three-person operation in 2007 and today still describes herself as the “CMTA Office.” Kim handles all things financial—donations, grants, accounting—and administrative, including HR. She earned an AA in accounting from Keystone Business School and a BA in accounting from Neumann University. She began her career keeping books for small companies in 1987, computerizing their office and accounting systems and found the variety kept the job interesting. The CMTA was Kim’s first non-profit accounting job and she earned her Certification in Non-Profit Accounting (CNAP) in 2013.
When Kim isn’t counting money, she’s counting stitches: She has made and given away two dozen afghans in the last couple of years and is looking into making them for families in shelters or kids in need. “I hope that people can feel the love and positive thoughts that I put into my afghans and it makes them feel loved and cared for,” she says. Kim, her husband and two grown kids live in the Philadelphia area.
Director of Development
Jeana was diagnosed with CMT at the age of 14 and has dedicated her entire professional life to the CMTA community and finding treatments for her daughter and all those who live with CMT. She started out as a volunteer in 2001 and in 2008 she became the director of community services, a position she held for nine years. During that time, she expanded the national branch system, developed Patient/Family conferences, created the successful Walk 4 CMT fundraising program, helped start Camp Footprint, led Awareness Month initiatives and built out the grassroots fundraising campaigns for community/branch leaders.
Jeana was named development director in June 2018. In this role, she spearheads the numerous opportunities for donors, board members, corporate sponsors and pharmaceutical companies to support the mission of the CMTA. She also created the Legacy Society and expanded the Innervators Monthly Giving program. In her spare time, Jeana loves to put on her waders, grab her fishing rod and hit the river to fish for smallmouth bass. The Zara Puppy is her favorite lure.
Director of Community Outreach
Laurel is responsible for the national branch system, Patient/Family Conferences and Camp Footprint. She also acts as liaison to the CMTA Centers of Excellence and is in charge of the CMTA’s educational materials and website. Laurel earned a degree in journalism with an advertising emphasis from San Diego State University. Before joining the CMTA, she worked as a media account executive for Cox Media and WECT and as a client relations manager/regional media buyer for Right Point Media.
A stay-at-home mother for 10 years, she also held many volunteer leadership positions, including leader of the Wilmington, NC CMTA Branch, communications chair at her church, Parent Teacher Student Organization hospitality chair and command team advisor for 1st Maintenance Battalion at Camp Pendleton. When Laurel can’t sleep in the middle of the night she works on a stand-up comedy routine that she’s not quite sure she’ll ever perform. If she doesn’t become a standup comedian, she’d like to be a dude ranch wrangler and ride horses all day.
National Youth Programs Manager
Jonah and several members of his family have CMT 1X. He has dedicated his career to working with kids and adults with disabilities. Jonah served on the CMTA Advisory Board for over 7 years and led the conference youth outings during that time. In addition to his advisory role, Jonah consulted for the CMTA building out the following key youth initiatives: launching and directing Camp Footprint, and assisting to create and develop the first CMTA Youth Council.
Jonah joined the CMTA staff full-time in early 2020 as the National Youth Programs Manager and is thrilled to be serving the CMTA community by working to celebrate and engage the youth. He is married to Megan and they have a beautiful little girl named Amelia Rose who also has CMT. In his spare time, he loves writing, music, travel, pizza, his dog Banjo, and getting the most out of this wonderful life!
Sarah is responsible for the strategic development and advancement of the use of technology and cybersecurity within the CMTA. Sarah was introduced to the CMTA in 2015 and has served in many different roles including camp counselor, branch leader and walk leader for the Tampa Bay Walk-n-Roll. Sarah earned her Master of Science degree in security technology management and her Bachelor of Applied Arts and Science at the Rochester Institute of Technology. Sarah has co-authored books on the topics of cyber bullying, cyber stalking and online gaming. Prior to joining the CMTA, Sarah worked as a learning technologist at the University of South Florida assisting faculty, staff, and students with S.T.E.M. initiatives, instructional technology support and other technology support needs throughout the campus, including classroom systems and remote labs. In her spare time, Sarah loves to travel and spend time with her family and friends. She believes in the motto, “Be the change you wish to see in the world.”