Amy Gray

Amy J. Gray

Chief Executive Officer

Amy leads the CMTA with more than two decades of extensive fundraising and management experience. Her expertise in board and staff development, financial and operational management, strategic planning and community engagement have been shaped by her roles working with four national voluntary health organizations.

Amy took over as CEO of the CMTA in May 2017. She has worked closely with the board of directors and key stakeholders to establish aggressive fundraising efforts to support new research initiatives and community programs. Under her leadership, the organization has expanded its Strategy to Accelerate Research and Center of Excellence Network, launched Patients as Partners in Research, gone through a rebranding effort and the launch of a new website. In addition, the Foundation earned a Perfect 100 score and 4-star charity rating from Charity Navigator, and a Platinum Seal of Transparency from GuideStar.

Amy plays an important role both nationally and internationally advocating for the CMT community. She serves as the appointed CMT patient advocacy leader on the NIH’s Rare Disease Consortium Research Network steering committee, and she is a committee member of TREAT-Neuromuscular Disease International Consortium, and a mentor through the Chan Zuckerberg Initiative Rare as One program. In addition, she has been asked to speak at conferences such as Global Genes, the World Orphan Drug Conference and Launch Bio on the CMTA’s Strategy to Accelerate Research and the importance of patient engagement in the drug development process.

Before joining the CMTA, Amy was the senior vice president of constituent and community relations for the Parkinson’s Foundation (PF), responsible for providing the overall leadership, strategy and vision for the foundation’s fundraising efforts and network of chapters. She joined the Foundation in 2013 in the role of vice president of chapter relations and community partnerships to oversee the nationwide network of affiliate chapters in organizational, mission, board and fund development activities. In 2014, she led the foundation through the process of integrating the chapters and headquarters into one organization. In 2016, she played a critical leadership role on the transition team in the merger between the National Parkinson Foundation and Parkinson’s Disease Foundation, the two legacy organizations that later became the Parkinson’s Foundation.

Before joining the PF, Amy served in executive roles at the Crohn’s & Colitis Foundation of America and the Muscular Dystrophy Association. In these roles, she successfully built strong chapters and robust relationships with donors, volunteer leaders and key stakeholders.

Amy is a graduate of St. Cloud State University in Minnesota and lives in South Florida with her husband and children.

Dr. Katherine Forsey

Chief Research Officer

Katherine brings a rich and varied portfolio of work experience to the CMTA with specialisms in science communication, education and programme leadership. Following her PhD in 2007, Katherine led the creation and growth of a new education and outreach programme at the Yorkshire Arboretum, managing a large team of volunteers to support thousands of children to experience science in a woodland environment. She also established her part-time freelance consultancy business to support other non-profit and commercial organisations to develop their provision and resources. Katherine worked for the Association for Science Education, the UK’s largest subject association, leading their provision across the north of England and promoting excellence in science teaching and learning. In 2012, Katherine moved on to lead a programme at the UK’s National STEM Learning Centre, working with over 70 Higher Education Institutions to provide professional development and networks for their technical specialists. In 2017, Katherine took her growing freelance consultancy business full time, working with industry, education providers and non-profits, leading development programmes, providing professional development and acting as a liaison between research, education and commercial stakeholders.

Katherine is a research biologist by training and holds a doctorate in Biology from the University of York in the area of expression, activity and localisation of metabolic enzymes during preimplantation embryo development. During her industry funded PhD, she spent time at the University of Cambridge, UK in Sygen sponsored research laboratories and at the Veterinary Research Institute, Burno Czech Republic. Katherine also gained her BSc Hons. in Molecular Cell Biology from the University of York. During her undergraduate degree, she completed a year in industry undertaking a genetic toxicology research project at Syngenta to develop in vitro alternative assays.

Dr. Forsey and members of her family live with Charcot-Marie-Tooth disease type 1A. She lives in Yorkshire, England with her husband and two children, making her the CMTA’s only international staff member. The CMTA is excited about the opportunity working with Dr. Forsey brings to expand its footprint with industry and researchers worldwide.

Jeana Sweeney, Director of Development

Jeana Sweeney

Chief Engagement and Gift Officer

Jeana was diagnosed with CMT at the age of 14 and has dedicated her entire professional life to the CMTA community and finding treatments for her daughter and all those who live with CMT. She started out as a volunteer in 2001 and in 2008 she became the director of community services, a position she held for nine years. During that time, she expanded the national branch system, developed Patient/Family conferences, created the successful Walk 4 CMT fundraising program, helped start Camp Footprint, led Awareness Month initiatives and built out the grassroots fundraising campaigns for community/branch leaders.

Jeana was named development director in June 2018. In this role, she spearheads the numerous opportunities for donors, board members, corporate sponsors and pharmaceutical companies to support the mission of the CMTA. She also created the Legacy Society and expanded the Innervators Monthly Giving program. In her spare time, Jeana loves to put on her waders, grab her fishing rod and hit the river to fish for smallmouth bass. The Zara Puppy is her favorite lure.

Kim Magee

Kim Magee

Director of Finance and Administration

Kim has the distinction of being the CMTA’s longest-serving employee. She started at what was then a three-person operation in 2007 and today still describes herself as the “CMTA Office.” Kim handles all things financial—donations, grants, accounting—and administrative, including HR. She earned an AA in accounting from Keystone Business School and a BA in accounting from Neumann University. She began her career keeping books for small companies in 1987, computerizing their office and accounting systems and found the variety kept the job interesting. The CMTA was Kim’s first non-profit accounting job and she earned her Certification in Non-Profit Accounting (CNAP) in 2013.

When Kim isn’t counting money, she’s counting stitches: She has made and given away two dozen afghans in the last couple of years and is looking into making them for families in shelters or kids in need. “I hope that people can feel the love and positive thoughts that I put into my afghans and it makes them feel loved and cared for,” she says. Kim, her husband and two grown kids live in the Philadelphia area.

Laurel Richardson

Laurel Richardson

Director of Community Outreach

Laurel is responsible for the national branch system, Patient/Family Conferences and Camp Footprint. She also acts as liaison to the CMTA Centers of Excellence and is in charge of the CMTA’s educational materials and website. Laurel earned a degree in journalism with an advertising emphasis from San Diego State University. Before joining the CMTA, she worked as a media account executive for Cox Media and WECT and as a client relations manager/regional media buyer for Right Point Media.

A stay-at-home mother for 10 years, she also held many volunteer leadership positions, including leader of the Wilmington, NC CMTA Branch, communications chair at her church, Parent Teacher Student Organization hospitality chair and command team advisor for 1st Maintenance Battalion at Camp Pendleton. When Laurel can’t sleep in the middle of the night she works on a stand-up comedy routine that she’s not quite sure she’ll ever perform. If she doesn’t become a standup comedian, she’d like to be a dude ranch wrangler and ride horses all day.

Jonah Berger

Jonah Berger

National Youth Programs Manager

Jonah and several members of his family have CMT 1X. He has dedicated his career to working with kids and adults with disabilities. Jonah served on the CMTA Advisory Board for over 7 years and led the conference youth outings during that time. In addition to his advisory role, Jonah consulted for the CMTA building out the following key youth initiatives: launching and directing Camp Footprint, and assisting to create and develop the first CMTA Youth Council.

Jonah joined the CMTA staff full-time in early 2020 as the National Youth Programs Manager and is thrilled to be serving the CMTA community by working to celebrate and engage the youth. He is married to Megan and they have a beautiful little girl named Amelia Rose who also has CMT. In his spare time, he loves writing, music, travel, pizza, his dog Banjo, and getting the most out of this wonderful life!

Sarah Gentry

Sarah Gentry

Technology Manager

Sarah is responsible for the strategic development and advancement of the use of technology and cybersecurity within the CMTA. Sarah was introduced to the CMTA in 2015 and has served in many different roles including camp counselor, branch leader and walk leader for the Tampa Bay Walk-n-Roll. Sarah earned her Master of Science degree in security technology management and her Bachelor of Applied Arts and Science at the Rochester Institute of Technology. Sarah has co-authored books on the topics of cyber bullying, cyber stalking and online gaming. Prior to joining the CMTA, Sarah worked as a learning technologist at the University of South Florida assisting faculty, staff, and students with S.T.E.M. initiatives, instructional technology support and other technology support needs throughout the campus, including classroom systems and remote labs. In her spare time, Sarah loves to travel and spend time with her family and friends. She believes in the motto, “Be the change you wish to see in the world.”

Sarah Kaider

Sarah Kaider

Digital Marketing Manager

Sarah is responsible for the digital marketing footprint of the CMTA, including social media, email marketing, and website. Sarah was introduced to CMT through her partner, David, a person living with CMT1A. She earned a degree in Mass Communications with tracks in Advertising and Public Relations from Towson University. Before joining the CMTA, Sarah served as the Communications Manager and the Social Media Manager for the Epilepsy Foundation of America. She was responsible for writing copy for and building the Foundation’s newsletter, creating and implementing strategy and campaigns for their national social media accounts, reviewing and editing content for their website, coordinating and producing Facebook Lives and other livestream events, and more. In her spare time, Sarah enjoys writing science fiction and horror novels, crocheting and knitting, watching her partner David play the drums on stage, streaming videogame playthroughs on Twitch, and spending time with her dog Theo and her hedgehog Regulus.