Participants Needed for SORD Clinical Trial

…recessive CMT2. The new form of CMT (sometimes diagnosed as distal hereditary motor neuropathy) is caused by the SORD gene and appears to be the most common recessive CMT type….

Surgery

…should always weigh the realistic potential benefits against the problems posed by surgery. CMTA Patient Support Fund The CMTA has put together a fund to support CMT patients being evaluated…

Allard USA Orthotics & Braces

…committed relationship with Allard USA, the CMTA is grateful to provide opportunities to improve the quality of life for CMT patients across the country.” Studies have shown that early intervention…

Volunteer Spotlight: Amy Keller

…covered with the CMTA STARS Amy has sold to raise funds for CMT research. One fateful day, Amy recalls, she decided she was tired of feeling down about her diagnosis…

STAR_Webinar_Transcript

…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…

Chelsea Singer, Yoga Instructor

…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…