CMTA Board of Directors
…managers, doctors, lawyers, or public servants, they have the expertise to oversee the organization’s operations and formulate its strategy for funding research and finding a cure. As individuals, whether they…
CMTA Patient & Research Summit
11/04/2023 @ All Day – The 2023 CMTA Patient & Research Summit on Saturday, November 4th will offer life-improving presentations on living well with CMT and will provide a comprehensive update on STAR research. Spend the day learning how to manage CMT and hear what you can do to be involved in advancing CMT research through clinical trials and studies.
Data Breach Update
…former CEO of the CMTA, formed the CMT Research Foundation (CMTRF). Sometime thereafter, CMT Research Foundation began using portions of the database to solicit donations for CMT Research Foundation. The…
Research Triangle Area, NC CMTA Branch
The Research Triangle Area, NC CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring…
Research Survey About Impacts of COVID‑19
Rare disease patients and caregivers: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study…
Research Project: CMT Biomarkers and Outcome Measures
Dear Patients and Families affected by Charcot Marie Tooth Disease Type 2A, 2F, 1B and X, We wanted to reach out to you about your possible participation in a research…
The Spring 2021 CMTA Report – Special Research Edition
DOWNLOAD AS PDF VIEW IN BROWSER The Special Research Edition of the Spring 2021 CMTA Report is available now and full of information for you. Inside, we bring you coverage…
SORD Research
SORD Research Every year more types of CMT are identified by STAR researchers, but there are many left to discover. The CMTA is helping to identify the genes that cause…
CMTA Staff
…Partners in Research initiative, which connects the CMT community with opportunities to get involved in CMT research and increase the body of CMT knowledge. Katherine is a research biologist by…
MDA and CMTA Fund Grant to Study Gene Therapy in Charcot-Marie-Tooth Disease
…core of the CMTA’s STAR (Strategy to Accelerate Research) approach to finding treatments for various types of CMT, so we are very pleased to announce today the first research project…