CMTA Board of Directors

…managers, doctors, lawyers, or public servants, they have the expertise to oversee the organization’s operations and formulate its strategy for funding research and finding a cure. As individuals, whether they…

CMTA Patient & Research Summit

11/04/2023 @ All Day – The 2023 CMTA Patient & Research Summit on Saturday, November 4th will offer life-improving presentations on living well with CMT and will provide a comprehensive update on STAR research. Spend the day learning how to manage CMT and hear what you can do to be involved in advancing CMT research through clinical trials and studies.

Data Breach Update

…former CEO of the CMTA, formed the CMT Research Foundation (CMTRF). Sometime thereafter, CMT Research Foundation began using portions of the database to solicit donations for CMT Research Foundation. The…

Research Triangle Area, NC CMTA Branch

The Research Triangle Area, NC CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring…

Research Survey About Impacts of COVID‑19

Rare disease patients and caregivers: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study…

SORD Research

SORD Research Every year more types of CMT are identified by STAR researchers, but there are many left to discover. The CMTA is helping to identify the genes that cause…

CMTA Staff

…Partners in Research initiative, which connects the CMT community with opportunities to get involved in CMT research and increase the body of CMT knowledge. Katherine is a research biologist by…