2015_Boston_PFC_Agenda

…have CMT1B. Ethan, 8, was also born with CMT1B. She is excited to be part of the CMTA community. Christopher Ouellette CMTA Board of Directors Chris is the Executive Vice…

2013_Orlando_PFC_Agenda

…does David provide services to people with CMT, he has CMT, as does his son Ethan. David’s maternal grandfather was the first known family member with CMT, and David assisted…

Breakthroughs_to_a_Cure

…Proved that drugs could be used to reduce inflammation that worsens CMT in a mouse with CMT1X. • Initiated a gene therapy approach to treat advanced symptoms of CMT1X. CMT2E…

Ask the Expert

The CMTA has compiled a list of previously-asked member questions that have been answered by our CMT experts. You can browse these categories or use the site search function to…

Logistics

…receive the contract for your venue please email it to Andi (andi@cmtausa.org) and the CMTA will get your Certificate of Insurance (COI), if this is required for your walk site,…

Request an Awareness Month Proclamation

Each year we ask our CMTA Branch Leaders to contact their governors to request that they declare September as Charcot-Marie-Tooth Awareness Month. The more state proclamations we get, the more…

Genetic Testing from Invitae

…genetic tests into a single service with higher quality, faster turnaround time, and a lower price than many single-gene tests today. Comprehensive and Customizable With 45 genes, CMT genetic testing…

Syracuse Mets Baseball Game

09/18/2024 @ 6:30 pm – 9:30 pm – The Syracuse CMTA branch will be hosting two events this September! The Syracuse CMTA branch will be recognized the Syracuse Mets baseball game on September 18th at 6:35pm. We will have information about CMT, swag, and will be throwing out the first pitch. A portion of the ticket proceeds will go directly to the CMTA […]

Discover Other Ways to Give

…important work by making a gift today. For further information, please email Jeana Sweeney, Chief Engagement and Gift Officer, at jeana@cmtausa.org. IRA Donation With this gift, you can: Avoid paying…