Ask the Expert: Breathing and CMT

…currently practices at Cedars-Sinai Medical Center in Los Angeles and is an associate clinical professor at UCLA School of Medicine. His clinical and research interests revolve around respiratory function in…

CMTA STAR Advisory Board Confidentiality Policy

…strategy for the acceleration of research known as STAR. The CMTA recognizes that the development of research and effective therapies requires collaboration with the public and private, for-profit sectors. The…

CMT2E Gene Therapy Project Approved

CMTA collaborates with leading gene therapy scientists at OSU The CMTA Board of Directors recently voted to fund a $265,000 research project for CMT2E. The study aims to advance CMT2E…

CMTA Board Approves CMT1B Project

At its March meeting, the CMTA Board of Directors approved a new research project aimed at developing biomarkers for CMT1B to aid in the collection of natural history data critical…

COMPASS Special Meeting and Happy Hour

11/04/2023 @ 5:00 pm – 8:30 pm – Join us on Saturday, November 4th at 5:00pm for a special meeting with Jonah Berger and Gilles Bouchard, Chairman of the CMTA Board of Directors to discuss the future of the young adult program within the CMTA! This meeting will take place at the Embassy Suites following the CMTA Patient & Research Summit. After the […]

Edmonton CMTA Branch

…area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy,…

Charcot–Marie–Tooth ‎Disease and Breathing Problems

…sleeping. Examples of sleep disordered breathing are Obstructive Sleep Apnea, Central Sleep Apnea, and Nocturnal Hypopnea. What is Obstructive Sleep Apnea? Research suggests CMT likely predisposes to obstructive sleep apnea…

CMT and Other Medical Conditions

…dysfunction- diabetes is well described. So CMT could directly impact sexual function. But we just do not have enough research on the subject to give you solid data. Can CMT…

Just “OWN” It

Just “OWN” It! Our community’s support is vital to furthering the mission of the CMTA. Wherever you are, YOU can help us raise awareness and research dollars by creating your…