My Son Cache

My 10-year-old son Cache is charming, competitive, tenacious, funny and thoughtful. He lights up a room when he enters it and leaves a smile behind when he goes. He loves sports, especially basketball, but also tetherball and swimming. He also enjoys goofing off with his friends and family, and beating me at board games.

Like me and one of his two sisters, Cache has CMT1A. He has severe muscle pain and wears orthotics to assist his walking. Cache played baseball for four years, but recently the pain in his legs became too much for him. He never let on to his team how much pain he was in, but he had to be carried to the car after games because of it.

Cache makes friends wherever he goes and has an incredibly sensitive heart. His ability to stay positive inspires those around him daily. He draws from his own experiences to find empathy for anyone else who struggles and likes to sit on the Buddy Bench at school for kids who need a friend. Cache doesn’t let what he can’t do define who he is. He might be one of the one in 2,500 who has CMT, but to those who know him, he is one in a million.

5 thoughts on “My Son Cache”

  1. I know all too well how this little boy feels. I have endure legs pains for as long as I can remember. It’s difficult to explain the pain and everyone you attempt to tell just looks at you like you are crazy. I mean, how can you look so normal and be in pain. This is why I don’t talk about CMT, but am forever thankful that it is finally being recognized. It’s about time everyone knew!

    1. I really just get so excited and inspired reading about little kids conquering and overcoming their CMT. I too was diagnosed with CMT type Ia at 11 but it did not keep me from climbing every tree in our yard. This little boy is courageous and he is not letting anything get in his way of living life to the fullest and being, well, a little boy after all. Great story I love it very much

  2. Good job going all out like he dose. I sure wished O could have done all that. In 6th grade at 11 years old did the 600 yard dash and was so slow all the other kids were off playing and my best friend to this day 57 years best friend was waiting for me. +○))

  3. My Granddaughter has CMT. At 7 years old, she would really benefit having a “pen or phone pal”. I believe she would be better equipped for the future if she had someone close to her age, a bit older perhaps, to discuss the social situations that are beginning to enter her life. Stories like Caches’ are both happy and sad but
    the story of my Granddaughter as well. Any thoughts or suggestions on where to find a young pen/phone pal?
    Cache, as I can sure you know, there are all kinds of talents, all kind’s of sports that you will be able to be a part of and triumph at. Somehow I just know you will, your Mother said so!!!!
    Thanks,
    Emma’s Grandma

  4. It would be very helpful is there was more widespread knowledge about CMT and the unfortunate limits it places on those having it. Number one point out to parenys and the maturing victim its not just a sprain or broken bone that will heal u. Chronic bone, joint snd cartilage pain results. Better knowledge helps.

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