CMTA Headlines:
Support Our CMT Campers with a Life-changing Gift Today!
The CMTA’s Camp Footprint is the only summer camp in the U.S. just for kids with CMT, and it is changing lives. It is creating hope, friendship, self-confidence and joy. August is right around the corner and we have more campers registered than ever before! We urgently need your support to keep Camp Footprint free of cost. Your donation today will also support groundbreaking research to find new treatments and a cure as well as CMTA programs and resources that improve care across the nation and touch the lives of adults, children and families affected by CMT. Donate Now!
Patients as Partners in Research Focus Group
The CMTA is pleased to announce the launch of our Patients as Partners in Research initiative! The goal of Patients as Partners in Research is to advance the work of our Strategy to Accelerate Research (STAR) and showcase ways the patient community can participate in the critical work of furthering the development of treatments, and ultimately a cure, for CMT.
One of the first projects belonging to our new research initiative is the establishment of a Patients as Partners in Research Focus Group. In partnership with the Cambridge, Massachusetts-based biopharmaceutical company Acceleron Pharma, the CMTA will bring together patients to participate in a focus group following the upcoming CMTA Patient/Family Conference in New Jersey on June 16. Sign up now …
Patient Family Conference and CMTeen Outing in June!
The CMTA is pleased to announce a Patient/Family Conference at the DoubleTree by Hilton in Fort Lee, NJ on Saturday, June 16, 2018. Our exciting program will feature neurologists Dr. David Herrmann from the Rochester, NY CMTA Center of Excellence, Dr. Louis Weimer from Columbia University and more! If you are wondering what to do with your CMTeens while you are at the CMTA’s Patient and Family Conference, we have a solution for you! The CMTeen Youth Outing—A Day in the BIG APPLE! Space is limited, so register now!
The Winter 2018 CMTA Report
In this issue: OT/PT Conference, Pilates, Balance Walking, Foot Surgery, Scootering and more …
Register Now for CMTA Camp Footprint 2018!
We are excited to announce that registration is now OPEN for Camp Footprint 2018, the only summer camp in the United States just for kids ages 10-18 with CMT! (If you are 19 or older and would like to make an impact on the lives of children living with CMT, we encourage you to apply to be a volunteer!) Learn more and register now …
CMT1A Research Breakthrough!
Scientists at Ionis Pharmaceuticals, in collaboration with the Charcot-Marie-Tooth Association, have identified a promising early-stage therapeutic approach with antisense technology for CMT Type 1A (CMT1A), the most common form of the disease, accounting for half of all cases. Read more …
Breakthroughs to a Cure
Studies in two laboratory models of CMT1A not only stopped progression of the disease, but also showed improvement of some symptoms. To deliver the first treatments for CMT1A and other types of CMT, we need funding for clinical trials and further drug development.
What is CMT?
Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and affects an estimated 2.8 million people.
Find Your Local Branch
The CMTA has over 80 Branches across North America to support people with CMT, raise awareness, and fund research. Connect with your nearest Branch today!
Fundraise for Our Future
Without fundraising and community volunteers, the CMTA would not be the leading force in CMT Research that it is today. Are you ready to make an impact?
The CMTA’s STAR (Strategy to Accelerate Research)
STAR – Disease Project Team Updates
