The Summer 2017 Issue of The CMTA Report Is Now Online!
Articles include: A Message from CEO Amy Gray, What CMTers Do on Summer Vacation, Study Finds Exercise the Best Medicine for Kids with CMT, The Adventures of Rui Rui and Tango … and more!
Click here to download your copy now!
New CEO Takes Helm of the CMTA
The CMTA Board of Directors announced May 15 the appointment of Amy J. Gray as the new chief executive officer of the Charcot-Marie-Tooth Association. “We are delighted to bring Amy on board as our new CEO,” said CMTA Board Chair Gilles Bouchard. “With her extensive experience, proven leadership and passion for our mission, Amy will help us accelerate the momentum in our fight
against CMT.” Read more …
MDA and CMTA Fund Grant to Study Gene Therapy in Charcot-Marie-Tooth Disease
March 17 – The Muscular Dystrophy Association and the Charcot-Marie-Tooth Association (CMTA) today announced a research grant totaling $119,999 to Kleopas Kleopa, M.D., for a study on the effectiveness of a gene therapy approach in CMT1X, the second most common form of Charcot-Marie-Tooth disease (CMT). Read more …
Julianna Snow, age five, passed away this summer from CMT. She was a huge inspiration for Stand to End CMT, a movement created to raise funds for treatment, and ultimately a cure, for CMT.
Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and affects an estimated 2.8 million people.
The CMTA has over 80 Branches across North America to support people with CMT, raise awareness, and fund research. Connect with your nearest Branch today!
Without fundraising and community volunteers, the CMTA would not be the leading force in CMT Research that it is today. Are you ready to make an impact?
Visit our store to see some of the most fun and fashionable ways to raise awareness!