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CMTA Lunch & Learn: CMT 1A-focused Patients as Partners in Research Town Hall
09/20/2023 @ 12:00 pm – 1:00 pm – Please join us on September 20th at 12:00 p.m. Eastern Time for our next Lunch & Learn education meeting when we will welcome guest speakers John Svaren and Gilles Bouchard. Dr. Svaren and Gilles will be sharing a CMT 1A STAR research update to include the following: the latest information about DTx-1252, the potential life-changing […]
Unidentified Type 2 CMT Research
…(INC). The INC is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of CMT and improving…
Frequently Asked Questions: Ionis/CMTA 1A Research Announcement
…to Accelerate Research (STAR). Since then it has funded more than 70 research projects and committed more than $8 million in funds. The CMTA supports people living with CMT by…
Could MRI Help Speed Up CMT1A Research? New Findings from Professor Mary M. Reilly, MBE
…researchers evaluate potential treatments more efficiently While more research is needed, ongoing studies like the CMTA-supported ACT-CMT extension study will help confirm these findings. If validated, MRI could become a…
Leading the Way: The CMTA Invests More Than $200K in Cutting-Edge CMT1A Organoid Research
The CMTA’s new $200K+ investment accelerates CMT1A organoid research, revolutionizing treatment evaluation for Charcot-Marie-Tooth disease (CMT) GLENOLDEN, PENNSYLVANIA, USA, February 21, 2024 — The Charcot-Marie-Tooth Association (CMTA), the largest philanthropic…
The CMTA Mourns the Loss of Scientific Advisory Board Member and Esteemed CMT Clinical Researcher
…to Accelerate Research (STAR) Scientific Advisory Board (SAB) Member, Dr. M. Laura Feltri. Dr. Feltri passed away December 25, 2023, at home in her native Milan, Italy, surrounded by family…
Progress in CMT2D Research
…CMT treatments”. If you would like to support the CMTA’s research efforts, please consider making a donation in support of the CMTA’s Strategy to Accelerate Research. Published on: March 29,…
CMT2D Research
…of the remarkable STAR Biotech Alliance Partners with whom we collaborate to advance research for CMT. Support CMT Research View the projects currently active or recently completed in the CMT2D…
CMTA-Funded Research Database Identifies New Mutations
…group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of CMT and improving the care of patients. Funded primarily…
CMT2C: Share Your Story
…with Charcot-Marie-Tooth Disease Type 2C (CMT2C) can be an isolating journey, especially with limited research focusing on the lived experiences of those with this specific type of CMT. Most research…