When our daughter Julia was diagnosed with CMT 2E, my wife and I decided that we needed to become actively involved with the CMTA. In 2007, we organized our first charity swim event to raise funds for the CMTA. Now nine years later, “TeamJulia & the Swim for the Cure” has raised approximately $700,000 for the CMTA’s STAR research program.
I have sat on the Board of Directors since 2007 and served as Chairman from 2011-2015. I welcome the opportunity to help the CMTA achieve even greater heights. Our organization has accomplished much in the past nine years (through dramatic expansion of the CMTA Branch network and awareness campaigns, and tremendous progress with NIH and the pharmaceutical/biotech industries in our research initiatives).
That being said, there is still much more work to do. I’m hopeful that we can build on the momentum that we’ve generated and take the CMTA to an entirely new level. I look forward to meeting leaders and members at meetings and patient/family conferences throughout the country, and working closely with the Board and CEO to raise research dollars to further our goal of finding a cure!
I received a BBA in Finance from Emory University in 1986, and I am currently an Executive Director in the financial services industry at a major Wall Street firm. It is my heartfelt goal that the CMTA achieve its stated mission: “to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie Tooth.”