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A First-Time Walk Leader Shares Her Experience
“My First Walk”: An Interview with Jess Diamond What inspired you to start a Walk 4 CMT? This year was my very first time hosting a Walk 4 CMT. I’d…
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…
Chelsea Singer, Yoga Instructor
…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…
New Law Makes Flying Easier for People Living With Charcot-Marie-Tooth Disease
…for the CMT community. CMTA remains committed to continue working to create a world where air travel is easier and safer for all who have CMT. Published: May 16, 2024…
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…
How to Decide If Foot Surgery Is Right for You
Box of Sunshine
…of CMT Live in the United States or Canada Be preparing for surgery directly related to CMT -or- Be newly diagnosed with CMT within the past year. Please note: Only…
Invitae Announces Major Expansion of Its Neurology Test Offerings
…papers published in the past year show evidence that the MORC2 gene causes CMT disease, and therefore was added to Invitae’s comprehensive CMT panel: Sevilla T, et al. Mutations in…
Inside Innovation | Education Event & Lab Tour
04/09/2025 @ 12:30 pm – 4:30 pm – Join us for a special event with CMTA-STAR Alliance Partner, Actio Biosciences on Wednesday, April 9 from 12:30 p.m. – 4:30 p.m. Pacific Time. CMT community members are invited to spend the afternoon learning about the world-class research Actio Biosciences is doing in CMT 2C/TRPV4+, and attendees will also get to tour Actio Biosciences research […]
The Art of Letting Go
by Elizabeth Ouellette “He has what? I’ve never even heard of CMT! I don’t believe it. I won’t believe it! There must be some mistake.” These were the first thoughts…