Category
Institution
Arkansas Children's Hospital
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Genetic Testing, Neurology, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy, Social Work/Counseling
Contact Person
Tiffany Roby
Contact Phone
501-364-1850
Contact Email
Website Address
1 Children's Way
Little Rock, Arkansas 72202
Little Rock, Arkansas 72202
Category
Clinical Director(s)
Aravindhan Veerapandiyan, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Genetic Testing, Neurology, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy, Social Work/Counseling
Website Address
1 Children's Way
Little Rock, Arkansas 72202
Little Rock, Arkansas 72202
Category
Clinical Director(s)
Dr. Niranjanan Nirmalananthan and Dr. Emma Matthews
Adult/Pediatric
Adult (16+)
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy
Website Address
St George's University Hospitals NHS Foundation Trust
Blackshaw Road
London, UK SW17 0QT
London, UK SW17 0QT
Category
Clinical Director(s)
Urvi Desai, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Genetic Testing, Neurology, Nutrition, Occupational Therapy, Physiatry, Physical Therapy, Pulmonology, Respiratory Therapy, Speech/Language Pathology, Social Work/Counseling, Clinical Research
1010 Edgehill Rd N
Charlotte, North Carolina 28207
Charlotte, North Carolina 28207
Category
Clinical Director(s)
Yessar Hussain, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Physiatry, Physical Therapy
Contact Phone
512-920-0140
Website Address
3901 Medical Pkwy, Ste 300
Austin, Texas 78756
Austin, Texas 78756
Category
Clinical Director(s)
Dr. Davide Pareyson
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Physical Therapy
Services Provided by Referral/Appointment
Genetic Counseling, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Social Work/Counseling
Contact Phone
39-02-999.599
Contact Email
Website Address
Via Celoria, 11 -20133
Milan
Milan
Notes
Referral to the following services can be arranged where necessary: Physiatrist, Orthopedic Surgeon, Orthotist, Genetic Counselor, Psychiatrist, Psychologist.
Category
Clinical Director(s)
Richard A. Lewis, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Pulmonology, Social Work/Counseling, Clinical Research
Office Fax
424-315-4423
Contact Person
Tami Kendra
Contact Phone
310-423-4268
Website Address
127 S San Vicente Blvd Ste 6600
Los Angeles, California 90048
Los Angeles, California 90048
Category
Institution
Chi Health Clinic Neurology Institute (Immanuel)
Clinical Director(s)
Yu-Ting Chen, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy
Contact Phone
402-717-0070
Website Address
6901 N. 72nd Street, Suite 2400
Omaha, Nebraska 68122
Omaha, Nebraska 68122
Category
Clinical Director(s)
Kaitlin Batley, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Physical Therapy, Social Work/Counseling
Contact Phone
214-456-2768
Website Address
2350 N Stemmons Fwy
Dallas, Texas 75207
Dallas, Texas 75207
Category
Clinical Director(s)
Michele Yang, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Person
Hattie Foster
Contact Phone
720.777.2806
Contact Email
Website Address
13123 E 16th Ave
Aurora, Colorado 80045
Aurora, Colorado 80045
Category
Clinical Director(s)
Hoda Abdel-Hamid, M.D.
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Physical Therapy
Contact Phone
412-692-5520
4401 Penn Ave 2nd Fl
Pittsburgh, Pennsylvania 15224
Pittsburgh, Pennsylvania 15224
Category
Department
Neuroscience Clinic
Clinical Director(s)
Diana Bharucha-Goebel, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Person
Kathleen Smart
Contact Phone
202-476-6193
Contact Email
Website Address
111 Michigan Ave NW
Washington, District of Columbia 20010
Washington, District of Columbia 20010
Category
Specialty
Genetic Counseling, Neurology, Occupational Therapy, Physiatry, Physical Therapy, Social Work/Counseling
Institution
Mayo Clinic
Clinical Director(s)
Christopher Lamb, MD
Contact Phone
904-953-0856
Website Address
4500 Mellish Road
Jacksonville, Florida 32224
Jacksonville, Florida 32224
Category
Specialty
Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy
Clinical Director(s)
Gyula Acsadi MD, PhD
Adult/Pediatric
Pediatric
Contact Person
Nanci Stolgitis, RN
Contact Phone
860-837-7500
Contact Email
Website Address
505 Farmington Ave
Farmington, Connecticut 06032
Farmington, Connecticut 06032
Category
Specialty
Cardiology, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Podiatry, Pulmonology, Social Work/Counseling
Institution
HSHS St. Elizabeth’s Hospital
Adult/Pediatric
Adult
Contact Phone
618-641-5803
3 St. Elizabeth's Blvd
Suite 5000
O'Fallon 62269
Suite 5000
O'Fallon 62269
Category
Institution
Duke University Hospital
Clinical Director(s)
Natalie Katz, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy, Social Work/Counseling
Contact Person
Trish Sexton
Contact Phone
9196136832
Contact Email
Website Address
3000 Erwin Road
Durham, North Carolina 27705
Durham, North Carolina 27705
Category
Specialty
Neurology, Orthotics/Prosthetics, Physiatry
Institution
University of Michigan
Clinical Director(s)
Gary Gallagher, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Orthotics/Prosthetics, Physiatry
Contact Phone
734-936-9020
Website Address
2850 S Industrial Hwy Suite 400
Ann Arbor 48104
Ann Arbor 48104
Category
Clinical Director(s)
Florian Thomas, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Social Work/Counseling
Contact Person
Maidhily Balakrishnan
Contact Phone
551-996-1324
Contact Email
Website Address
300 Essex St #300
Hackensack, New Jersey 07601
Hackensack, New Jersey 07601
Category
Clinical Director(s)
Kevin J. Felice, DO
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry, Social Work/Counseling
Contact Person
Sharon McDermott
Contact Phone
860-612-6305
Contact Email
Website Address
2150 Corbin Ave
New Britain, Connecticut 06053
New Britain, Connecticut 06053
Category
Institution
Houston Methodist Hospital
Clinical Director(s)
Jun Li, MD, PhD, FANA, FAAN
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Social Work/Counseling
Contact Person
Elisa Miller
Contact Phone
713-363-7310
Contact Email
Website Address
6560 Fannin Scurlock Tower, 8th Floor
Houston, Texas 77030
Houston, Texas 77030
Category
Clinical Director(s)
Raghav Govindarajan, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Cardiology, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Podiatry, Pulmonology, Social Work/Counseling
Website Address
3 St. Elizabeth's Blvd
O'Fallon 62269
O'Fallon 62269
Category
Clinical Director(s)
Sharique Ansari, MD, MPH*
Adult/Pediatric
Adult (16+)
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry, Social Work/Counseling
Contact Phone
817-267-6290, option 4
Website Address
1305 Airport Fwy Ste 205
Bedford, Texas 76021
Bedford, Texas 76021
Category
Clinical Director(s)
Sharique Ansari, MD, MPH*
Adult/Pediatric
Adult (16+)
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry, Social Work/Counseling
Contact Phone
817-267-6290, option 4
Website Address
4525 Heritage Trace Pkwy, Ste 117
Keller 76244
Keller 76244
Category
Sub-Specialty
Physical Medicine & Rehabilitation
Institution
University of California Davis Health (UCD Health)
Clinical Director(s)
Lisa Williams, MD
Adult/Pediatric
Adult and Pediatric
Contact Person
Amber Apperson
Contact Phone
(916)734-7041
Contact Email
1700 Y Street
4860 Suite
Sacramento, California 95817
4860 Suite
Sacramento, California 95817
Category
Clinical Director(s)
Reza Seyedsadjadi, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling, Clinical Research
Office Fax
617-726-6991
Contact Person
Tamika Scott
Contact Phone
617-726-3642
Charles River Plaza
165 Cambridge St Ste 820
Boston, Massachusetts 02114
Boston, Massachusetts 02114
Category
Institution
Mayo Clinic
Clinical Director(s)
Christopher Lamb, MD
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
904-953-0856
Website Address
4500 Mellish Road
Jacksonville, Florida 32224
Jacksonville, Florida 32224
Category
Institution
Medstar Georgetown University
Clinical Director(s)
Nicholas Streicher, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Physical Therapy, Pulmonology, Speech/Language Pathology
Contact Phone
202-444-1774
Contact Email
Website Address
3800 Reservoir Rd NW
7th Floor, PHC Building
Washington, District of Columbia (DC) 20007
7th Floor, PHC Building
Washington, District of Columbia (DC) 20007
Category
Clinical Director(s)
Zarife Sahenk, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Physical Therapy
Services Provided by Referral/Appointment
Orthotics/Prosthetics, Orthopedic Surgery, Physiatry
Contact Phone
614-722-2203
555 S 18th St Ste OC1A
Columbus, Ohio 43205
Columbus, Ohio 43205
Category
Clinical Director(s)
Omer Abdul Hamid, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy, Social Work/Counseling
Contact Person
Rulla Starr
Contact Phone
407-650-7715
Contact Email
Website Address
6535 Nemours Pkwy
Orlando, Florida 32827
Orlando, Florida 32827
Category
Clinical Director(s)
Michael Weiss, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Neurogenetics, Physiatry
Contact Person
Gail Schessler, Clinic Coordinator
Contact Phone
206-598-4295
Contact Email
Website Address
1959 NE Pacific St 8th Fl
Seattle, Washington 98195
Seattle, Washington 98195
Category
Institution
Antwerp University Hospital
Department
Department of Neurology
Clinical Director(s)
Prof. Dr. Peter De Jonghe
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology
Contact Phone
+32 3 821 34 23
Contact Email
Website Address
Wilrijkstraat 10
Edegem 6520
Edegem 6520
Notes
*Services include Clinical Neurology and Neurophysiology, Muscle Histopathology, and Molecular Genetic Diagnosis. The clinic has a multidisciplinary team consisting of all relevant medical and para-medical disciplines.
Category
Institution
Nicklaus Children’s Health System
Clinical Director(s)
Migvis Monduy. MD
Services Provided at Clinic
Genetic Counseling, Genetic Testing, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Pediatrics, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
786-624-2154
3100 SW 62nd Ave
Miami 33155
Miami 33155
Category
Department
Department of Neurology
Clinical Director(s)
Daniela Maria Menichella, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
312- 695-7950
Peripheral Neuropathy/Division of Neuromuscular Disease
259 E Erie St
Chicago, Illinois 60611
Chicago, Illinois 60611
Category
Institution
Wexner Medical Center
Clinical Director(s)
Michael Isfort, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Podiatry
Contact Phone
614-293-4969
Martha Morehouse Outpatient Care
2050 Kenny Rd
Columbus, Ohio 43221
Columbus, Ohio 43221
Category
Institution
Penn State Health Hershey Medical Center
Clinical Director(s)
Ashutosh Kumar, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Pediatrics, Physiatry, Physical Therapy, Pulmonology
Contact Person
Paula Cameron
Contact Phone
717-531-2908
Contact Email
Website Address
90 Hope Drive
Hershey, Pennsylvania 17033
Hershey, Pennsylvania 17033
Category
Clinical Director(s)
Manoj Menezes, MD and Joshua Burns, PhD (Research)
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry
Services Provided by Referral/Appointment
Genetic Counseling, Nutrition, Orthotics/Prosthetics, Social Work/Counseling
Contact Phone
(02) 98451325
Contact Email
Website Address
Cnr Hawkesbury Rd and Hainsworth St
Westmead, New South Wales 2145
Westmead, New South Wales 2145
Notes
Referral to the following in-hospital services can be arranged where necessary: Orthotist, Genetic Counselor, Psychiatrist, Psychologist, Social Worker, Nutritionist/Dietician.
Category
Institution
Primary Children's Hospital
Clinical Director(s)
Dr. Russell Butterfield
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Orthopedic Surgery, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Contact Person
Danica Hobson
Contact Phone
801-213-7756
Contact Email
Website Address
81 N Mario Capecchi Dr
Salt Lake City, Utah 84113
Salt Lake City, Utah 84113
Category
Clinical Director(s)
Ryan D. Jacobson, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Pulmonology, Social Work/Counseling
Services Provided by Referral/Appointment
Physiatry, Podiatry
Contact Person
Sherri Taylor-Kennedy
Contact Phone
312-942-4500
Website Address
1725 W Harrison St Ste 1118
Chicago, Illinois 60612
Chicago, Illinois 60612
Category
Institution
Medical University of South Carolina (MUSC)
Department
Neurology - Neuromuscular Clinic
Clinical Director(s)
Sarah Breevoort, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Cardiology, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry, Physical Therapy, Pulmonology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthopedic Surgery
Office Fax
843-792-8626
Contact Phone
843-792-3223
96 Jonathan Lucas Street, Ste.301 MSC 606
Charleston, South Carolina 29425
Charleston, South Carolina 29425
Category
Institution
Seattle Children’s Hospital
Clinical Director(s)
Seth Perlman, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Pediatrics, Physiatry, Physical Therapy, Social Work/Counseling
Contact Person
Kara Smith, BSN
Contact Phone
206-987-6678
Contact Email
Website Address
4800 Sandpoint Way NE
Seattle, Washington 98105
Seattle, Washington 98105
Category
Institution
Shriner's Hospital (Utah)
Clinical Director(s)
Russell Butterfield, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Social Work/Counseling
Contact Person
Natalie Raleigh
Contact Phone
801-536-3564
Contact Email
Website Address
1275 E Fairfax Rd
Salt Lake City 84103
Salt Lake City 84103
Category
Clinical Director(s)
John Day, MD, PhD, and Ana Tesi Rocha, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Speech/Language Pathology
Contact Person
Jessica Guzman, Nurse Coordinator
Contact Phone
650-723-0993
730 Welch Rd 2nd Fl
Palo Alto, California 94304
Palo Alto, California 94304
Category
Clinical Director(s)
John Day, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Contact Phone
650-723-6469
Contact Email
Website Address
Stanford Neuroscience Health Center
213 Quarry Rd
Palo Alto, California 94304
Palo Alto, California 94304
Category
Institution
Swedish Neuroscience Institute (James Tower)
Clinical Director(s)
Christyn Edmundson, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy
Contact Person
Christian Houk
Contact Phone
206-320-3494
Contact Email
Website Address
550 17th Ave, Suite #400
Seattle 98122
Seattle 98122
Category
Clinical Director(s)
Sabrina Yum, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Physiatry
Contact Person
Hannah Borger (clinic coordinator)
Contact Phone
215-590-1719
Contact Email
Website Address
Wood Building, 6th Fl
3401 Civic Center Blvd
Philadelphia, Pennsylvania 19014
Philadelphia, Pennsylvania 19014
Category
Clinical Director(s)
Steven Scherer, MD, PhD and Chafic Karam, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy
Contact Person
Kari Roberts
Contact Phone
215-662-3606
Contact Email
Website Address
Perelman Center for Advanced Medicine, South Pavilion, 2nd Fl
3400 Civic Center Blvd
Philadelphia, Pennsylvania 19014
Philadelphia, Pennsylvania 19014
Category
Institution
The Johns Hopkins CMT Center
Clinical Director(s)
Charlotte Sumner, MD and Bipasha Mukherjee-Clavin, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Occupational Therapy, Orthotics/Prosthetics, Pediatrics, Physical Therapy, Clinical Research
Services Provided by Referral/Appointment
Genetic Counseling, Pulmonology
Contact Person
Theresa Cox
Contact Phone
(Adult) 410-614-1196; (Pediatric) 410-955-4259
Contact Email
601 North Caroline Street
5th floor
Baltimore, Maryland 21287
5th floor
Baltimore, Maryland 21287
Category
Institution
Baylor College of Medicine
Department
Neuromuscular Center
Clinical Director(s)
Thomas Lloyd, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Person
Nikki Roseman
Contact Email
Website Address
7200 Cambridge Street, Suite 9A
Houston, Texas 77030
Houston, Texas 77030
Category
Department
UNC Neurology Clinic
Clinical Director(s)
Rebecca Traub, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry
Contact Phone
984-974-4401
Website Address
300 Meadowmont Circle, Suite 202
Chapel Hill, North Carolina 27515
Chapel Hill, North Carolina 27515
Category
Clinical Director(s)
Mary M. Reilly, MD, and Francesco Muntoni, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Occupational Therapy, Orthotics/Prosthetics, Social Work/Counseling
Contact Person
Mariola Skorupinska
Contact Phone
(0044)2034488019
Contact Email
Website Address
8-11 Queen Sq
London WC1N 3BG
London WC1N 3BG