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University of California, San Francisco – Pediatric

University of California, San Francisco – Pediatric
Category
University of California, San Francisco – Pediatric
Clinical Director(s)
Alex Fay, MD, PhD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
415-353-7596
Website Address
https://www.ucsfbenioffchildrens.org/conditions/charcot-marie-tooth_disease/
1825 4th St, 6th Fl Ste A
San Francisco, California 91458

University of Colorado

University of Colorado
Category
University of Colorado
Department
Department of Neurology
Clinical Director(s)
Vera Fridman, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Pulmonology, Social Work/Counseling, Clinical Research
Contact Phone
720-848-2028
Website Address
https://medschool.cuanschutz.edu/neurology
Anschutz Outpatient Pavilion
1635 Aurora Ct Ste 4200
Aurora, Colorado 80045

University of Florida

University of Florida
Category
University of Florida
Clinical Director(s)
James Wymer, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Pain Management, Podiatry, Respiratory Therapy, Social Work/Counseling
Contact Phone
352-294-5400
Website Address
https://fixel.ufhealth.org/getting-care/als-neuromuscular-disorders/
Norman Fixel Institute for Neurological Diseases
3009 SW Williston Rd
Gainesville, Florida 32608

University of Illinois at Chicago

University of Illinois at Chicago
Category
University of Illinois at Chicago
Department
Department of Neurology
Clinical Director(s)
Charles K. Abrams, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthopedic Surgery, Physiatry, Podiatry
Contact Phone
312-996-4780
Website Address
https://hospital.uillinois.edu/primary-and-specialty-care/neurology-and-neurosurgery/neurological-conditions-we-treat/muscular-dystrophy
1801 W Taylor St Ste 4 E
Chicago, Illinois 60612

University of Iowa Hospitals & Clinics

University of Iowa Hospitals & Clinics
Category
University of Iowa Hospitals & Clinics
Clinical Director(s)
Michael E. Shy, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy
Contact Phone
319-384-6362
Contact Email
uicmtclinic@uiowa.edu
Website Address
https://uihc.org/charcot-marie-tooth-disease-cmt
Boyd Tower, 2nd Fl
200 Hawkins Dr
Iowa City, Iowa 52242

University of Kentucky Neuroscience Institute

University of Kentucky Neuroscience Institute
Category
University of Kentucky Neuroscience Institute
Specialty
Genetic Counseling, Neurology, Physical Therapy
Institution
University of Kentucky Neuroscience Institute
Clinical Director(s)
Nakul Katyal, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Physical Therapy
Contact Person
Nakul Katyal, MD
Contact Phone
859-323-5661
Website Address
https://ukhealthcare.uky.edu/kentucky-neuroscience-institute
740 S. Limestone, Kentucky Clinic, First Floor, Wing C, Suite B101
Lexington, Kentucky 40536

University of Louisville

University of Louisville
Category
University of Louisville
Clinical Director(s)
Zeng Y. Wang, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthotics/Prosthetics, Physical Therapy, Podiatry
Contact Person
Zahemy Claro Perez
Contact Phone
502-588-4800
Contact Email
zahemy.claro@uoflhealth.org
Website Address
https://louisville.edu/medicine/departments/neurology/divisions/neuromuscular
401 E Chestnut St Ste 510
Louisville, Kentucky 40202

University of Miami

University of Miami
Category
University of Miami
Clinical Director(s)
Mario Saporta, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
305-243-9173
Professional Arts Center
1150 NW 14th St, Ste 609
Miami, Florida 33136

University of Michigan

University of Michigan
Category
University of Michigan
Institution
University of Michigan
Clinical Director(s)
Gary Gallagher, MD and Brett McCray, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Orthotics/Prosthetics, Physiatry
Contact Phone
734-936-9020
Website Address
https://www.uofmhealth.org/conditions-treatments/brain-neurological-conditions/adult-charcot-marie-tooth-cmt-clinic.
MDA and CMT Clinic
2850 South Industrial Highway
Suite 400
Ann Arbor, Michigan 48104

University of Minnesota Health Neurology Clinic

University of Minnesota Health Neurology Clinic
Category
University of Minnesota Health Neurology Clinic
Clinical Director(s)
David Walk, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Nutrition, Physiatry, Podiatry, Social Work/Counseling
Contact Phone
763-898-1000
Contact Email
mdiaz3@fairview.org
Neurology Clinic at Fairview Maple Grove Medical Center
14500 99th Ave N
Maple Grove, Minnesota 55369

University of Missouri

University of Missouri
Category
University of Missouri
Department
Department of Neurology
Clinical Director(s)
Dr. Vovanti Jones
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry
Contact Phone
573-882-1515
Website Address
https://www.muhealth.org/conditions-treatments/neurosciences/neurology
1020 Hitt St
Columbia, Missouri 65212

University of Pittsburgh Medical Center (UPMC) Department of Neurology

University of Pittsburgh Medical Center (UPMC) Department of Neurology
Category
University of Pittsburgh Medical Center (UPMC) Department of Neurology
Institution
University of Pittsburgh Medical Center (UPMC)
Department
Department of Neurology
Clinical Director(s)
Joshua Smith, DO
Services Provided at Clinic
Genetic Counseling, Neurology, Orthotics/Prosthetics
Contact Person
Rebecca Molczan
Contact Phone
412-692-4917
Contact Email
molcrs@upmc.edu
Website Address
https://www.upmc.com/services/neurology/services/neuromuscular-disease-center
Kaufmann Medical Building
3471 5th Avenue 8th floor
Pittsburgh, Pennsylvania 15213

University of Rochester Peripheral Neuropathy/CMT Clinic

University of Rochester Peripheral Neuropathy/CMT Clinic
Category
University of Rochester Peripheral Neuropathy/CMT Clinic
Clinical Director(s)
David Herrmann, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Social Work/Counseling
Contact Phone
585-275-2559
Contact Email
CMT_Studies@urmc.rochester.edu
Website Address
https://www.urmc.rochester.edu/neurology/clinical-services/charcot-marie-tooth-clinic.aspx
601 Elmwood Ave
Box 673
Rochester, New York 14642
Notes
Request for genetic counseling must be made prior to visit. Orthotics/prosthetics not at clinic; separate appointment is required.

University of Utah

University of Utah
Category
University of Utah
Clinical Director(s)
Russell Butterfield, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physiatry, Pulmonology, Respiratory Therapy
Contact Phone
801-585-7575
Website Address
http://healthcare.utah.edu/neurosciences/neurology/neuromuscular_disorders.php
175 N Medical Dr East
Salt Lake City, Utah 84132

Virginia Commonwealth University

Virginia Commonwealth University
Category
Virginia Commonwealth University
Institution
Virginia Commonwealth University
Clinical Director(s)
Nicholas Johnson, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Person
Kendall Rodier
Contact Phone
804-360-4669
Contact Email
kendall.rodier@vcuhealth.org
11958 W Broad Street
Henrico, Virginia 23233

Washington University School of Medicine, St. Louis

Washington University School of Medicine, St. Louis
Category
Washington University School of Medicine, St. Louis
Clinical Director(s)
Stefanie Geisler, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
314-362-6981
Website Address
https://neuromuscular.wustl.edu/
660 S Euclid Ave
St. Louis, Missouri 63110

Yale School of Medicine

Yale School of Medicine
Category
Yale School of Medicine
Institution
Yale School of Medicine
Clinical Director(s)
Sasha Zivkovic, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Neurology, Occupational Therapy, Orthopedic Surgery, Physiatry, Physical Therapy
Contact Phone
203-785-4085
Website Address
Clinic Website
800 Howard Avenue
New Haven, Connecticut 06510
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