Jonah Berger, National Youth Programs Manager and Youth Council Leader

Jonah, who also serves as director of the CMTA’s Camp Footprint, lives in Dewitt, Michigan and helps coordinate the activities of the CMTA Youth Council.

Hannah Roberts Cook, Youth Council Co-Leader

Cleveland, Ohio

Hannah graduated from Kent State University in 2017 with a Bachelor’s degree in business management and marketing. After graduation, she joined Northern Trust, a Wealth Management bank, as the Cleveland sales associate and marketing coordinator, where she is responsible for the coordination and execution of all marketing efforts, including events, as well as new business generation and sales processes.

Outside of work, Hannah enjoy the great outdoors (hiking, biking, kayaking), cooking, watching documentaries, travelling to new places, and the theater. She love sunsets/sunrises, a good veggie burger with fries, the mountains, all things CLEVELAND, baseball, her dog Fitz and, above all, spending time with my family and friends.

Sebastian Bruce

Ontario, Canada

Social Media Committee

Sebastian Bruce is from Ontario Canada where he attends a local College for computer programming. He was diagnosed with CMT 1A at 12 years old along with his twin sister which was inherited from their dad. He became involved with the CMTA Youth community in 2019 at camp footprint, and joined the Youth Council in 2022 where he continues to serve on the Social Media Committee. His goal is to educate more people about CMT and help youth get involved with the community.

Toby Fantl

Calgary, Alberta

Special Projects Committee

Toby Fantl lives in Calgary, Alberta and attends Western High School as a sophomore. At age 8 he was diagnosed with CMT type 1A and has attended camp footprint for 4 years. He is super excited about serving the youth council on the special projects committee. For fun, Toby enjoys editing movies, anything involving computers such as programming and studying hardware design, and woodworking.

Elsa Groenink

Hudsonville, Michigan

Engagement Committee

Hello! My name is Elsa and I have CMT 1A. I inherited my CMT genetically from my mother. I got involved with the CMT youth movement about seven years ago when I first went to Camp Footprint. I love working with kids and have a passion to teach others about CMT. I am currently in culinary school at the Secchia Institute for Culinary Education. In my free time, I love to swim, spend time with my family, go line dancing, and hang out with my dog Charlie!

Hannah Hokenson

Kissimmee, Florida

Special Projects Committee

Hannah Hokenson lives in Kissimmee, Florida. She is working towards a degree in English to become an editor and author. Diagnosed at 16 years old, she found the CMTA through Camp Footprint the next year. Hoping to use her creativity to make an impact in the lives of other kids with CMT, she joined the Special Projects Committee on the Youth Council.

Joseph McCullough

Aliquappa, Pennsylvania

Special Projects Committee

My name is Joseph McCullough, I have CMTX. I got involved with the CMTA through Camp Footprint in Pennsylvania. I was recommended to the CMTA by my friend Toby who I met there. I hope I can bring more ideas and a positive mind to the CMTA. I have always wanted to be a better leader and make a good impact on the world. I think with the CMTA I can accomplish these goals while helping the CMTA to be a better organization. I am serving on the Special Projects Committee.

Ashlyn Montisanti

Boston, Massachusetts

Social Media Committee

Ashlyn Montisanti is from Boston, MA and she has CMT Type 1A which she inherited from her mother. Ashlyn serves on the Social Media Committee with the goal to spread awareness and raise money for a cure! In her free time, Ashlyn loves to spend time with her family and friends, especially her dog, Lucky. She also enjoys traveling and going to concerts. Ashlyn hopes to be a role model for youth living with CMT and spread positivity in the community.

Shelbi Ritter

Jefferson City, Missouri

Social Media Committee

Hi! My name is Shelbi Ritter. I was diagnosed with CMT 1E when I was 12. A few years later I found out about Camp Footprint and now I’ve been going for 3 years. Recently I’ve found joy in advocating not only for myself but for others similar to me which is why I joined the Youth Council. Some things I enjoy are archery, designing architecture, voice acting, rocking out to loud music and going to concerts, and cooking (Especially eating the food).

Lily Sander

Charlotte, North Carolina

Social Media Committee

Lily Sander lives just South of Charlotte, NC. She was diagnosed with CMT type 1e and HNPP at four years old. She joined the CMTA Youth Council after getting to know the leadership and some of the members at Camp Footprint. Lily immediately knew she wanted to make her mark and aims to empower youth living with CMT to live their lives to the fullest. She works on the Social Media committee.

Em Sayward

Bloomington, Indiana

Engagement Committee

My name is Em Sayward, and I have CMT type 1b. I found out about the CMTA through Camp Footprint in 2016, and I’ve been apart of the community ever since! I want to be someone that other youth with CMT can look up to. I love this community so much and I love meeting other people that have CMT, which is why I’m on the Engagement Committee!

Hannah Spencer

Springfield, New Jersey

Special Projects Committee

Hannah Spencer is fifteen years old and resides in Springfield, New Jersey. Hannah is diagnosed with CMT Type 1A and got involved in the CMTA after attending Camp Footprint which she states was “a great experience.” She hopes to be able to change CMT lives across the world while being a part of the Youth Movement.

Abigail Thompson

Latrobe, Pennsylvania

Engagement Committee

Abigail Thompson has CMT Type 1A and lives in Latrobe PA. Abigail is apart of the CMTA Youth Council and works on the engagement committee. Abigail is 18 years old and attends Indiana University of Pennsylvania and is currently studying communications media marketing. Abigail joined the Youth Council to empower the youth and hopes to one day have a future without CMT.

Amanda Vorpahl

Des Moines, Iowa

Social Media Committee

Amanda Vorpahl currently resides in Des Moines Iowa, where she attends the local collage as a freshman. She was diagnosed with CMT4C at 9 years old, along with her two sisters. Now at 18 years old, Amanda joined the Social Media committee of the Youth Council, with a special focus on fundraising. She has been attending camp footprint since 2018.

Evan Zeltsar

Boston, Massachusetts

Engagement Committee

Evan Zeltsar is a 4-year member of the CMTA Youth Council, as well as a member of the CMTA Advisory Board. He has CMT type 1A. He lives in Boxford, MA and is currently in his first year of college at Williams College. Outside of the council, he can be found skiing, playing frisbee, or playing clarinet and saxophone.