Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
CMTA Legacy Society
…decade since the CMTA’s research efforts were consolidated under the banner of STAR (Strategy to Accelerate Research), the STAR alliance has expanded to more than 25 pharmaceutical, biotech and service…
Clinical Summit 2023 – Impact Report
…researchers, clinicians and alliance partners is driving rapid advances in CMT research. This Clinical Summit provides an essential opportunity for all those working with CMT patients to refresh and update…
Family Planning For CMT – Part 2
…be a continued relationship of some kind with the biological parents (open or closed adoption). It is important for a family considering adoption to do the research and identify all…
Episode 3 of the Simply CMT Podcast with Dr. Katherine Forsey
Join us as we talk with Dr. Katherine Forsey, CMTA’s Chief Research Officer. Dr. Forsey shares her journey living with CMT, the impact of CMTA’s Strategy To Accelerate Research (CMTA-STAR),…
CMT2S Breakthrough
…Participate? To participate in this research, click the button below to register with the CMTA’s Patients as Partners in Research today! Registering ensures you are the first in line for…
Natural History of TRPV4 Neuromuscular Disease – CMT2C
…interested in taking part in this research, or would like any further information, please contact the study team directly with the subject line ‘CMTA Referral for TRPV4 Research’. Email: sxie21@jhmi.edu…
The Adventures of Archy
…and she talked about “Archy” the mascot turtle of the association and how he has CMT. She explained that the point of the program was to raise money for research…
Hereditary Sensory Neuropathy Serine trial (SENSE trial)
In December 2021, the Charcot-Marie-Tooth Association Strategy to Accelerate Research (CMTA-STAR) awarded Dr. Mary M. Reilly and her team at the UCL Queen Square Institute of Neurology in London $354,826…
Gene Therapy Advances for CMT4J, CMT4A and GAN
…exploring additional CMT types that could benefit”. If you would like to support the CMTA’s research efforts, please make a donation in support of the CMTA’s Strategy to Accelerate Research….
A Retrospective Study of Subjects with Mutations in the C12ORF65 Gene Causing Complex CMT Type 6
…carries out specialist research into neurodegenerative diseases at the University of Cambridge and Addenbrooke’s Hospital. As a participant in this study, you would be asked to take part in a…