Community Partnership Opportunities

…CMT community. Where do you shop for your CMT-related needs? What service providers do you use for your CMT-related needs? Who would other CMT patients use? Sponsor Prospecting Start a…

Volunteer

…in the CMT community? Become a volunteer host for a Walk 4 CMT or Cycle 4 CMT event and help raise awareness and funds to advance research and support for…

Shelbi Ritter: “Trust your gut!”

…for Shelbi’s needs. CMT1E is a rare form of CMT, accounting for approximately one percent of people with genetically confirmed CMT. Children often show symptoms within the first two years…

Lia O’Sullivan: “I’m ok!”

…made easier by several fortunate events: The first was finding the Bay Area CMTA Branch, then led by Elizabeth Ouellette. Along with Lia, we met many others with CMT, and…

Managing Neuropathic Pain

Does CMT cause pain? Patients with CMT often have pain. Pain can be related to nerve injury, but other causes of pain include musculoskeletal causes such as joint injury. About…

James Cuizon, Ironman

…online and found the CMTAthletes website (now at www.facebook.com/groups/cmtathletes). He was amazed to learn that people with CMT were competing in full-distance Ironman triathlons. He decided that if they could…