Taxonomy

Gilles Bouchard Takes Helm of CMTA Board

Gilles Bouchard took the helm of the Charcot-Marie-Tooth Association March 16, saying that while he is “excited and delighted” with the progress made by the CMTA’s STAR research program, there’s still much work to be done.

CMTeen Dolphin Outing in PEOPLE Online

The CMTA is in the pages of PEOPLE online once again, with a story recounting a CMTeen expedition to “swim with the dolphins” at the Miami Seaquarium. The kids, all of whom have CMT, frolicked with the dolphins for half an hour, petting, kissing and high-fiving them.

CMTA-Funded Study on 3-D Printing Technique for Comparing CMT Heel Surgeries Named Game Changer at AAOS Meeting

A pioneering new surgical technique developed by Dr. Glenn B. Pfeffer, using 3-D prints to compare different surgical approaches in the same patient, was named one of six “Game Changers” of the year by the American Academy of Orthopaedic Surgeons .

CMT is on TV!

In the spring of 2015, the CMTA launched a Public Service Announcement, or PSA, about CMT. Our hope is to have these spots played throughout the country, but we can’t do this alone—we need YOU!

The New York Stem Cell Foundation and the CMTA Enter Collaboration to Advance Neuropathies Research

The immediate aim of the collaboration is to develop a bank of induced pluripotent stem cell (iPSC) lines for a variety of neuropathy disorders of known genetic causation and to eventually develop personalized drug therapies.

101 Practical Tips for Dealing with CMT

Written by and for the CMTA community, 101 Tips offers solid advice from people who have lived through it all–from diagnosis to surgery to bracing–to report back to you from the front lines with their strategies for living with CMT.

STAR: Our CMT Research Strategy

The Launch of STAR In 2008, the CMTA’s Board of