Welcome to our Branch

Erie, PA CMTA Branch

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Erie, PA CMTA Branch
We are a relaxed group of friends whose lives have been touched by CMT's challenges. Currently, we have regular members from as far south as Meadville, PA and as far north as Buffalo, NY, and our members range in age from 7 years old to 80 years young. At our bimonthly meetings, we may host speakers, discuss current events regarding CMT, or just chat about our experiences surrounding CMT. We believe we all have something to teach each other, and we are eager to learn from one another. To this end, new members are always welcome, and reservations are not required. We sincerely hope you will join us!

The Erie, PA CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!

160 E Front St
Blasco Memorial Library
Joyce Steinkamp

Branch Leader Picture
Joyce was diagnosed with CMT at age six, at the urging of a very astute kindergarten teacher, who recognized her poor balance, timid nature, and general clumsiness. Her parents were advised not to tell her of the diagnosis in order that she not "short-change" her abilities, even as she had her first orthopedic foot surgery at age nine. Despite learning of CMT at age 14 and many subsequent foot surgeries, Joyce believes she has not short-changed her abilities, having earned a Bachelor of Science degree in Biology and working as a perfusionist in the medical field for 15 years. When the symptoms of CMT interfered with her career in open-heart surgery, she decided to use her medical background experience with CMT and the internet to form a CMTA branch for others with this oftentimes isolating disease. Joyce believes the things that make each of us the most different are our gifts to be shared with the world. As Ghandi once stated,  “We must be the change we wish to see in the world.” Her involvement with the CMTA aligns well with these beliefs as she tries to share her experience with CMT until one day CMT is eliminated much like many other debilitating diseases.

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