We are a diverse group of folks from newly diagnosed to those dealing with CMT all their lives. We learn from each other and our frequent guest speakers about CMT and ways to cope with it. Over 300 folks with CMT have been identified in our area. When new folks join us it is always exciting! We look forward to hearing from you!
The Tampa Bay Area, FL CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!
Our dear friend, Vicki, was a woman of great strength, courage, and conviction. She touched so many lives and was so giving of her time, energy, and most importantly, love. We dedicate our Tampa Bay WALK 4 CMT in loving memory to this amazing mentor, advocate and friend. You will be deeply missed. May you rest in peace, amazing Vicki.
Ed was born and raised on the Jersey Shore and moved to sunny Florida in 1972. He has been married to his lovely wife Vicki for 35 years and has one son, Bryan, age 33. Ed found out he had CMT at an early age because both his mother and uncle had already been diagnosed with it. His sister, niece and son also have it. Ed has worked as a technical product manager for SGS, the world's largest independent inspection, testing, verification and certification company, for 38 years. He says the company has been very supportive in accommodating his CMT as it progressed. Currently President of the Florida Wheelchair Bowling Association, Ed stays active by bowling in leagues twice a week. His other hobbies include classic cars—he has restored a 1971 Chevy Camaro SS and he also enjoys riding his adaptive Harley-Davidson motorcycle. Ed’s personal mantra is CMT = Courage, Motivation & Tenacity. He believes you have to have the courage, motivation and tenacity to keep moving forward and not let the challenges in life, including those of CMT, keep you from your passion.
Sarah is responsible for the strategic development and advancement of the use of technology and cybersecurity within the CMTA. Sarah was introduced to the CMTA in 2015 and has served in many different roles including camp counselor, branch leader and walk leader for the Tampa Bay Walk-n-Roll. Sarah earned her Master of Science degree in security technology management and her Bachelor of Applied Arts and Science at the Rochester Institute of Technology. Sarah has co-authored books on the topics of cyber bullying, cyber stalking and online gaming. Prior to joining the CMTA, Sarah worked as a learning technologist at the University of South Florida assisting faculty, staff, and students with S.T.E.M. initiatives, instructional technology support and other technology support needs throughout the campus, including classroom systems and remote labs. In her spare time, Sarah loves to travel and spend time with her family and friends. She believes in the motto, “Be the change you wish to see in the world.”
