Los Angeles, CA CMTA Branch

Find us on Facebook

Welcome to our Branch

Let’s get together! Everyone with CMT is welcome, along with your loved ones/friends.

Visit us on Facebook:

Los Angeles, CA CMTA Branch
Let's get together! Everyone with CMT is welcome, along with your loved ones/friends.Visit us on Facebook:

The Los Angeles, CA CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!

4533 Admiralty Way
Marina Del Rey
California
90292
Lloyd Taber - Marina del Rey Public Library
Alani Price

Branch Leader Picture
Alani was born and raised in rural northern Idaho and came to Los Angeles to attend Occidental College in 2000. She studied religion and culture, studied abroad in Nepal (a small country in the Himalayas located between India and China), and later earned a Master of Public Health degree at UCLA. She currently lives in LA with her husband and son, and works as a Coordinator for the California Department of Public Health's Prenatal Screening Program at Cedars-Sinai Medical Center. She enjoys traveling, reading, gardening, vegetarian cooking and continuing to learn about Nepali culture as well as topics related to global maternal health and human rights/social justice.
310-710-2376
John Ramos

Branch Co-Leader Picture
John was raised in Chino, California and was an automotive mechanic and photographer for 30 years. CMT became a factor in his life in his 40's, with symptoms progressing further. In 2015, John was diagnosed with CMT2A after genetic testing. He met other CMTers for the first time after attending the 2016 Walk 4 CMT event organized by the Los Angeles branch. This was an eye-opening experience for him! Since then, he has helped the CMTA by photographing nearby events and branch rneetings. John's hobbies include photography, genealogy and camping. In his position as co-leader, John is looking forward to meeting new people, spreading awareness and learning more about CMT!
951-318-5669

Directions to listing