Aetrex Worldwide, Inc.

…on two critical areas: the delivery of comfortable, well-designed shoe solutions to people with CMT and the creation of awareness about CMT and the CMTA to the public and the…

Community Partnership Opportunities

…CMT community. Where do you shop for your CMT-related needs? What service providers do you use for your CMT-related needs? Who would other CMT patients use? Sponsor Prospecting Start a…

Managing Neuropathic Pain

Does CMT cause pain? Patients with CMT often have pain. Pain can be related to nerve injury, but other causes of pain include musculoskeletal causes such as joint injury. About…

James Cuizon, Ironman

…online and found the CMTAthletes website (now at www.facebook.com/groups/cmtathletes). He was amazed to learn that people with CMT were competing in full-distance Ironman triathlons. He decided that if they could…

Lia O’Sullivan: “I’m ok!”

…made easier by several fortunate events: The first was finding the Bay Area CMTA Branch, then led by Elizabeth Ouellette. Along with Lia, we met many others with CMT, and…

NeuroMeds

…a CMTX Connexin-32 mutation. Each of the following subtypes had one reported individual: CMT1A (nonduplication), CMT1B (myelin protein zero (MPZ)), CMT2E (neurofilament light chain (NFL)), and CMT1D (early growth response-2…

Surgery

…should always weigh the realistic potential benefits against the problems posed by surgery. CMTA Patient Support Fund The CMTA has put together a fund to support CMT patients being evaluated…

Volunteer Spotlight: Amy Keller

…covered with the CMTA STARS Amy has sold to raise funds for CMT research. One fateful day, Amy recalls, she decided she was tired of feeling down about her diagnosis…