Filename 2021_Summer_CMTA_Report.pdf
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Date added June 7, 2021
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Category The CMTA Report

From the inspiring story of CMTA Board Member Steve O’Donnell to the wisdom from an old man’s journey with CMT, the online version of the Summer 2021 issue is available now and full of information for you. Inside, we bring you coverage of recent research grants and study results, nutrition tips for managing CMT symptoms, occupational therapy for CMT hands, stories and perspectives from people who champion the CMTA through their giving and fundraising and so much more.

  • A Message from CEO Amy Gray
  • Celebrating Steve (and his 2 decades of fundraising)
  • CMTA Awards Züchner $300,000 for Gene Discovery Work
  • CMTA Awards $100,000 to Explore Potential 1X Treatment
  • CMTA-STAR Awards $1.1 Million in Grants to Researchers Prepping for CMT1X, CMT2A Clinical Trials
  • Interim Analysis Shows Sustained Benefits of PXT3003 for CMT1A Patients
  • Seeking Participants for Biomarker Study
  • It’s Time to Dance 4 CMT!
  • Managing CMT Symptoms with Nutrition
  • Occupational Therapy for CMT Hands
  • Heated Massager Warms Cold Legs
  • Why She Gave: Jean Nibbe
  • An Old Man’s Journey with CMT
  • First Annual Coldiron Derby Fundraiser Nets $30,823
  • Students at St. Rocco Parish Raise Pennies for the CMTA