Join Now
Join over 9667 active members:

The Fun Begins

When I was in my teens my hands started to tremor and i didn't know why. When i reached my mid twenties i started to have numbness in my feet and they were cold all the time. By the time i hit 30 i finally had to do something. I went to a neurologist who did a dna test and found cmt of an unknown variant. Now i have been diagnosed for a year and it has gotten worse plus i have added in some osteoporosis. I can no longer do my job and am off on short term probably turning into long term disability. I hope to find a way to maintain what movement i still have. I really don't like what this disease has already done and know there is no cure but i keep going and take it one day at a time.