Page 13 - 2020 Winter CMTA Report
P. 13

AWARENESS MONTH

                                                                       OPENS EYES WITH
                                                                       “SEE CMT!” CAMPAIGN

                                                                       CMT Awareness Month was an exciting and mem-
                                                                       orable celebration of community in 2019, as well as a
                                                                       successful educational event that made a big impact on
                                                                       the CMTA’s social networks and beyond.
                                                                          The 2019 theme was “See CMT!” illustrated with a
                                      Parkland, FL                     pair of orange CMTA glasses symbolizing that many of
                                      Walk 4 CMT
                                                                       the symptoms and challenges that come with having
                                                                       CMT are invisible from the outside.
      T H E   C M TA   T H A N K S   A L L                                The glasses were featured in the Facebook frame
      O F   O U R   T R U LY   A M A Z I N G                           supporters used to deck out their profile pictures and get
      WA L K   4   C M T   L E A D E R S !                             in the Awareness Month spirit. During the month, the
                                                                       CMTA issued weekly challenges, including uploading the
      ARIZONA...........................Tucson: Kristen Oaxaca         Facebook frame, sharing a “What is CMT?” infographic,
      CALIFORNIA.......................Los Angeles: Alani Price        participating in a Walk 4 CMT and supporting CMT
                            Palo Alto: Ori Bash & Tau O’Sullivan
                            San Diego: Kendall Trout                   research. Videos accompanying the challenges starred
      COLORADO .......................Denver: Carol Ris                community members, and the CMTA website featured
      CONNECTICUT  ..................Hamden: Lynne Krupa               two interviews with community members who are
      DISTRICT OF COLUMBIA ......Washington: Steve Weiss               actively raising aware-
      FLORIDA ............................Miami: Mae Greenberg         ness: Jess Diamond
                            Parkland: Lara Rustici                     shared her experience
                            Tampa: Sarah Gentry
      GEORGIA...........................Atlanta: Jeannie Zibrida       as a walk leader and
      ILLINOIS.............................Chicago: Jay Pate           Dr. Kleopas Kleopa
      MAINE...............................Peaks Island: Mary Louie     revealed what Aware-
      MARYLAND........................Oxford: Steve O’Donnell          ness Month is like for
      MASSACHUSETTS ...............Boston: Jill Ricci                  a CMTA researcher.
      MINNESOTA.......................Aitkin: Alissa Virnig               Community
                            Crosslake: Jo Smith                        members participated
      NEW JERSEY ......................Morristown: Mark Willis         in all of the challenges and made a huge wave on social
      NEW YORK........................Long Island: Jessica Aviles
                            Syracuse: Mike Casey                       media. On Facebook alone, CMT Awareness Month
      OHIO.................................Cincinnati: Jill Stuhlmueller  posts received 37,686 hits and 3,448 shares. On average,
                            Columbus: Jessica Diamond                  each Awareness Month Facebook post of 2019 reached
      PENNSYLVANIA..................Pittsburgh: Debbie Czarnecki       9,123 people. The “What is CMT?” infographic posted
                            West Chester: Kim Magee & Ashley Trout     on the CMTA Facebook page was shared 2,723 times!
      SOUTH CAROLINA..............Greenville: Amy Greene                  Community members also started the “CMT Lego
      TEXAS................................Dallas/Ft. Worth: Thomas Roderiguz
                            Houston: Kristin Leard & Benjy Hershorn    Challenge.” Like the ALS Ice Bucket Challenge, the
      VERMONT..........................Charlotte: Chris & Elizabeth Ouellette  CMT Lego Challenge involved nominating friends to
      WASHINGTON ...................Seattle: Emily Osborne             walk across a floor covered with Lego pieces, simulating
      WISCONSIN.......................Milwaukee: Lois Hawkins          the neuropathic pain and balance difficulties that people
      ONTARIO, CANADA ...........Fergus: Kelly Hall                    with CMT experience. h

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