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May 2019

El Paso, TX CMTA Branch Meeting

May 25 @ 10:30 am - 12:30 pm
Hospitals of Providence, Memorial Campus, Auditorium A,
2001 N. Oregon Street
el paso, TX 79902 United States
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Please join us for the next meeting of the El Paso CMTA Branch May 25th Branch Meeting at Hospitals of Providence, Auditorium A. A light Lunch will be served.  We will have a guest speaker will be speaking with us on the topic of CMT basics and receiving a proper diagnosis.  Please RSVP to Jo Ann.  We look forward to seeing you there!

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Updates on CMT Research by CMTA Board Member

May 25 @ 11:00 am
Los Altos Library,
13 S Antonio Rd.
Los Altos, CA 94022 United States
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CMTA board chairman Gilles Bouchard will share an overview of the amazing treatment-focused progress the CMTA has made over the past 10 years while highlighting STAR’s current breadth of projects, breakthroughs, and partnerships. Learn how the CMTA and its fast-growing network of pharmaceutical partners are using cutting-edge technologies, such as stem cells, CRISPR, gene editing, gene therapy, biomarkers, high-throughput screening, and axon regeneration to accelerate CMT research. Refreshments and light snacks will be served. Please RSVP to Ori Bash or…

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June 2019

The 2019 Oxford Funathlon

June 1 @ 9:00 am - 3:00 pm
Robert Morris Inn,
314 N Morris St
Oxford, MD 21654 United States
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JUNE Meeting of the Central NJ CMTA Branch!

June 1 @ 10:00 am
CentraState Medical Center,
901 West Main Street Star and Barry Tobias Ambulatory Campus
Freehold, NJ 07728 United States
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The next meeting of the Central NJ CMTA Branch will be a Saturday, June 1st. Join us at 10am at CentraState Medical Center Jack Aaronson Conference Center, Room C Star and Barry Tobias Ambulatory Campus 901 West Main Street Freehold, NJ 07728 Speaker to be announced. Of course, there is always us to do the talking too! It is still our 10th Anniversary too! Hope to see you there!! Please let us know if you plan to attend. It helps…

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Tee Off for CMT

June 3 @ 11:30 am - 5:00 pm
The Elkridge Club,
6100 N Charles St
Baltimore, MD 21212 United States

The CMTA is a fully accredited 501(C)(3) non-profit and the leading organization dedicated to developing treatments, and ultimately a cure, for Charcot-Marie-Tooth, a painful and disabling disease. Charcot-Marie-Tooth, known as CMT, affects more than 2.8 million people worldwide. That’s one in every 2,500 Americans living with this debilitating, medically incurable disease that attacks the peripheral nerves in the body. Symptoms of CMT may include muscle atrophy in the legs and arms, foot drop leading to frequent tripping and falling, debilitating fatigue,…

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Wine & Chocolate Fundraiser

June 7 @ 5:00 pm - 8:00 pm
Elevation Cellars,
19496 144th Ave NE Suite A 130
Woodinville, WA 98072 United States
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FRIENDS AND FAMILY, Please join us for the 5th annual Wine & Chocolate fundraiser for the Charcot-Marie-Tooth Association! Friday, June 7, 5:00 – 8:00 p.m. Drop in for some wine and hors d’oeuvres. Elevation Cellars 19496 144th Ave NE Suite A 130 Woodinville, WA 98072 Tickets for wine tasting are $10 each at the door, and 30 percent of proceeds on your wine purchases will go to the Charcot-Marie-Tooth Association for CMT research. If you can’t join us but would…

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Chicago South CMTA Branch – Special Guest Speaker – David Tannenbaum

June 8 @ 10:00 am - 1:00 pm
Peace Lutheran Church,
1900 East Lincoln Hwy (Rte 30, Maple Rd)
New Lenox, IL 60451 United States
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Come join us as we share stories and receive advice from longtime CMTA Report “Ask David” column author, David Tannenbaum! David Tannenbaum, LCSW, is a psychotherapist in New York City who has been in practice for more than 30 years. David specializes in guiding others along their journey of growing emotionally and spiritually through their physical challenges. Discussion 10:00 am-noon. Lunch to follow.  We hope you will join us for this special event!

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Branch Meeting with Special Guest Speaker Elizabeth Ouellette

June 8 @ 11:00 am - 1:00 pm
Tracy Memorial Library,
304 Main St.
New London, NH 03257 United States
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CMTA Board Member and Patient Advocate, Elizabeth Ouellette, has been involved with the Charcot-Marie-Tooth Association (CMTA) since her son, Yohan, was diagnosed with CMT 18-years ago. She has written informative articles for the CMTA Report, led successful fundraisers, created a school-based program, “Teaching Kids about CMT” and developed the current CMTA Branch network. Elizabeth will speak about the many resources available through the CMTA as well as provide promising updates on treatment-driven Strategy to Accelerate Research or STAR. Elizabeth currently…

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Springfield, MO CMTA Branch Spring Meeting 2019

June 8 @ 1:00 pm - 3:00 pm
Schweitzer Brentwood Branch Library Center,
2214 Brentwood Boulevard Phone: 417-883-1974
Springfield , MO 65804 United States
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We will be having a Guest Speaker Seth Owens PT, DPT from Mercy coming to educate and demonstrate physical and pulmonary therapy for CMT patients. He has a fun and educational agenda planned. Seth has a fantastic way of incorporating everyday function into therapy, he WILL get you inspired to reach for your dreams! Definitely, a meeting you don’t want to miss! Hope to see everyone there! Drinks and Snacks will be provided.  We love seeing new faces too!

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Orthopedic Perspective on CMT: Braces vs Surgery

June 15 @ 2:00 pm - 5:00 pm
St Martin’s Church,
3110 Ashford Dunwoody Road, NE
Atlanta, GA 30319 United States
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Dr. Glenn Pfeffer

The Atlanta CMTA Branch is pleased to host CMTA Advisory Board member and World Renowned Orthopedic Surgeon, Dr. Glenn Pfeffer from our CMTA Center of Excellence – Cedars Sinai Hospital in Los Angeles, CA. Dr. Pfeffer will give a power point presentation on “Braces vs Surgery” and will have lots of time for our questions and discussions. This is an incredible opportunity to speak with a CMTA Foot and Ankle Surgical Specialist.  We hope you can join us for what…

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CMTA Canada South Ontario Meeting: Speaker – CMT & Nutrition

June 22 @ 9:00 am
Victoria Park Senior Centre,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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On June 22 we will have a talk about “CMT & Nutrition” by two Naturopathic Doctors. Dr. Katie McKeown and Dr. Michael Long from Optimum Integrated Health Centre in Fergus will be coming. Check them out at www.ontariohealth.org.  We look forward to seeing you at this meeting.  Newcomers welcome!

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July 2019

Seattle Walk 4 CMT

July 13 @ 11:00 am - 2:00 pm
Harbour Pointe Middle School,
5000 Harbour Pointe Blvd
Mukilteo, WA 98275 United States
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2nd Annual Seattle Walk 4 CMT Connect with other CMT patients and families. We will have refreshments, games, silent auction and a DJ playing family friendly music during the entire event. We’ll walk around the track for 30 minutes (you do not need to physically walk to participate). Come out and show your support! Free to register. Free to attend. Saturday – July 13th 11:00am – 2:00pm Harbour Pointe Middle School 5000 Harbour Point Blvd Mukilteo, WA 98275 Please register…

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August 2019

Seattle, WA CMTA August Meeting

August 24 @ 1:00 pm - 3:00 pm
University of Washington Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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SAVE THE DATE! Check back soon, more information to come….

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September 2019

September Branch Meeting

September 10 @ 6:30 pm - 7:30 pm
Maine Medical Center- Dana Center Classroom 3,
22 Bramhall St
Portland, ME 04102 United States
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Portland Branch

SAVE THE DATE! Check back soon, more information to come…

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5th Annual Nature Walk 4 CMT

September 21 @ 9:00 am - 1:00 pm
Long Hunter State Park,
2910 Hobson Pike
Hermitage , TN 37076 United States
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2018 walk phot

SAVE THE DATE!! Please mark your calendars and join us for our 5th annual CMTA Fundraiser in September. Hope to see you there! 5th Annual Nature Walk 4 CMT Saturday, September 21, 2019 at 9:00 AM Long Hunter State Park, Couchville Trail 2910 Hobson Pike Hermitage, TN 37076 Join our family and friends in our 5th year of awareness and raising funds for research for a rare condition called Charcot-Marie-Tooth Disorder (CMT). For more information contact…. Bridget Sarver at bdsarver81@gmail.com…

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9th Annual Walk for CMT – Fergus Fundraiser

September 29 @ 9:30 am - 11:30 am
Victoria Park,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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The 9th Annual Walk for Charcot Marie Tooth (CMT) Disease – Fergus Fundraiser – Sunday, September 29th @ 9:30am at Victoria Park, Fergus (150 Albert Street). The event is to educate those around us about CMT and help to support families and others who are faced with this disease but ultimately, to help find a cure! CMT is the most commonly inherited neuropathy in the world affecting 1 in 2,500 people worldwide totaling an estimated 2.8 million people. The 2-5…

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October 2019

October Meeting

October 12 @ 1:00 pm - 3:00 pm
University of Washington Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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SAVE THE DATE! Check back soon, more information to come….

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November 2019

“How Digisplints Can Help Your CMT” – Digisplints

November 30 @ 10:00 am - 12:00 pm
Victoria Park Senior Centre,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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Please join us to learn about how these splints can help those with CMT in everyday life! Taken from the www.digisplints.ca website: “If you, or someone you know, has to wear a splint every day for the rest of your life to slow down or stop the progression of deviation caused by Arthritis, or any other affliction that affects the movement of your fingers, or that causes pain to your fingers or that causes hypermobility of the finger joints, then…

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May 2019

May 21 @ 7:38 pm
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