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September 2017

Spike CMT with SHSU CMT Awareness Night!

September 28 @ 6:30 pm - 9:00 pm
Sam Houston State University-Johnson Colisium,
1964 Avenue H
Huntsville, TX 77340 United States
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Enjoy a great evening of volleyball on Thursday, September 28, as the Sam Houston State University Bearkats take on The University of New Orleans Privateers to raise awareness and funds for Charcot-Marie-Tooth disease. There’s tons of fun to be had-our famous Shark-O-Marie tooth T-shirts will be for sale; we’ll also toss some into the crowd; and each person who buys a CMTA “STAR” gets a CMTA stadium cup filled with goodies and a chance to win a volleyball autographed by…

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Seattle Wine & Chocolate Fundraiser

September 29 @ 3:00 pm - 7:30 pm
Elevation Cellars,
19495 144th Ave NE
Woodinville, WA 98072 United States
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Wine and Chocolate Friends, family and countrymen: Lend me your ears! We are about to begin our annual wine tasting fundraiser for The Charcot Marie Tooth Association. (You know, that irritating disease that causes me to always walk like I’ve been tasting too much wine!) Please join us on September 29 for the 3rd Annual Wine & Chocolate Fundraiser sponsored by Elevation Cellars. A world without CMT doesn’t need to be a hope or a promise, you can make it…

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3rd Annual Dallas Walk 4 CMT

September 30 @ 9:30 am
South Lakes Park,
556 Hobson Ln
Denton, TX 76205 United States
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Orange n White Walk4CMT facebook profile pic

Join us for our 3rd annual Walk 4 CMT! Come out for a lovely 2.75 mile walk (turnaround point at 1 mile) to raise money for the CMT Association. There is a playground for kids, picnic tables, grills and a lake nearby. We will start the day off with a walk and end with a raffle and food. Tell all your friends and family to come out and join the fun! For those of you unable to walk please feel…

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3rd Annual Dam Walk 4 CMT

September 30 @ 10:00 am - 12:00 pm
US Army Corps of Engineers,
35507 Co Hwy 66
Crosslake, MN 56442 United States
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Orange n White  Particpant Walk4CMT facebook profile pic

Join us for the 3rd Annual Dam Walk 4 CMT event to raise awareness and critical funds for CMT research. How to register: Please visit https://cmta.akaraisin.com/damwalk4cmt Participant cost: $25 Adult, $15 Kids * Participants will receive their own Dam Walk 4 CMT T-shirt! Event details: Join us for our 3rd  annual Dam Walk 4 CMT, it will be a 1.2 miles (1k) awareness walk around the beautiful Crosslake dam area. Campgrounds is open if you’d like to camp out Friday…

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October 2017

3rd Annual Chester County Walk for CMT

October 1 @ 11:00 am - 2:00 pm
West Goshen Community Park,
1023 Fern Hill Rd
West Chester, PA 19380 United States
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Join us on October 1st, and help us change the world for everyone affected by CMT! The walk will be on a paved path at the West Goshen Community Park. Refer to the event website below to register or donate. Event Website: https://cmta.akaraisin.com/chesterpa

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October Meeting with Yoga

October 5 @ 12:00 pm - 1:00 pm
Christ Church United Methodist,
1221 Quarrier St
Charleston, WV 25301 United States
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Come to our meeting and to explore Yoga. Be prepared to have fun! Our leader has CMT, too! Please wear clothes you can move in, bring a yoga mat if you have one or can borrow one, or a large towel if you can’t bring a yoga mat. A belt or cloth dog leash will come in handy. Don’t forget a water bottle.

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Chicago Walk 4 CMT

October 7 @ 10:00 am - 12:00 pm
Wolfe Wildlife Refuge,
W 109th St
Oak Lawn, IL 60453 United States
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Orange n White  Particpant Walk4CMT facebook profile pic

We welcome you, your family, and your friends, to join us for the Chicago Walk 4 CMT fundraising and awareness event! Each year, thousands of people participate in these walks across the country to support the CMT Association’s mission of a world without CMT. That is why we are asking you to come together with us to create awareness, renew hope and generate a community of support, all while raising funds for the CMT Association. You do not have to…

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Suffolk, VA CMTA Inaugural Branch Meeting

October 7 @ 2:00 pm - 4:00 pm
First Baptist Church,
237 N Main St
Suffolk, VA 23434 United States
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The Suffolk, VA CMTA Branch is for all those who have Charcot-Marie-Tooth disease and their families. The first meeting will focus on getting acquainted and deciding on topics and speakers for future meetings. You’ll also meet others in your area who have CMT and be able to share resources, ideas, CMT-related information and personal experiences. Our meetings will center around CMT education, awareness, research updates, fundraising, advocacy, current events and will include occasional guest speakers. There will be valet parking…

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October Support Group Meeting with Guest Speaker Jonah Berger

October 14 @ 10:00 am - 12:00 pm
Pi Beta Phi Rehabilitation Institute,
1215 21st Ave South Building is Medical Center East - South Tower (very Important)
NASHVILLE, TN 37232-8590 United States
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Jonah Berger

Wonderful news for our last support group meeting of the year!  We are excited to announce special guest speaker Jonah Berger, CMTA Advisory Board Member, CMTA Camp Footprint Co-Director and motivational speaker. Jonah is a  favorite speaker at CMTA conferences and branches, talking honestly and openly about the day-day struggles of living with CMT and how he tries to rise above them. Jonah lives in Colorado, where he runs a business called The Rhythm Within, working with kids and adults…

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Southeastern Wisconsin CMTA Branch Meeting

October 14 @ 10:00 am - 12:00 pm
Pettit National Ice Center,
500 S 84th St
Milwaukee, WI 53214 United States
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We have a great meeting lined up for everyone! We are excited to announce that Michelle Hayes, National Manager of Branch and Community Relations with the CMTA will be speaking on the CMTA, Strategy to Accelerate Research (STAR) as well as awareness, ways to get involved and more! You don’t want to miss this chance to meet Michelle and your fellow CMTers. She wants to meet you in person to say THANK YOU for all you have done to support…

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Madison, Wisconsin CMTA Ice Cream Social & Special Guest Appearance!

October 14 @ 3:00 pm - 5:00 pm
First Weber,
5250 E Terrace Drive
Madison, WI 53718 United States
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Summer-Ice-Cream-Social 2

Please join us as we welcome our National Manager of Branch and Community Relations, Michelle Hayes, all the way from Dallas, TX!! She’ll be our guest speaker and is a WEALTH of knowledge on all things related to the CMTA.  Michelle will be speaking on the CMTA, Strategy to Accelerate Research (STAR) as well as awareness and more!  You don’t want to miss this chance to meet Michelle and you fellow CMTers.  Be sure to bring your questions, this is…

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Bingo Time!

October 15 @ 2:00 pm - 4:00 pm
Verona Moose Bingo Hall,
1510 Commerce Rd
Staunton, VA 24401 United States
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Bingo time! Fabulous prizes, food and a whole lot of fun! Presale 5 cards for $25.00, at the door 4 cards for $25.00. To pre-purchase cards call Jeanette Thompson. All proceeds go directly to the CMTA STAR research program. I am currently selling tickets to raffle a Yeti Cooler valued at $200. It will be drawn at the Bingo fundraiser on October 15 at the Verona Moose.  Lots of great prizes from places like Scentsy, Thirty-one, a season pass to…

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October Grand Rapids, MI CMTA Branch Meeting

October 18 @ 6:30 pm - 8:30 pm
Mary Free Bed Rehabilitation Hospital,
235 Wealthy St SE
Grand Rapids, MI 49503 United States
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Please join us as Stephanie Ballard, Occupational Therapist with Family Tree Therapies, leads a discussion on the benefits of Occupational Therapy for people with CMT.

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2nd Annual RockSTARs for CMT!

October 20 @ 7:00 pm - October 21 @ 2:00 am
One-2-One Bar,
1509 S Lamar Blvd Ste 600
Austin, TX 78704 United States

Join us for a night of live bands, great times, dancing, raffles, and silent auction items (including an awesome Danelectro guitar signed by Bob Schneider, Jimmie Vaughan, Marcia Ball, Ray Benson, Rodney Crowell, and many more great Austin musicians). Absolutely 100 percent of the ticket proceeds will go to fight Charcot-Marie-Tooth disease! Everyone knows we keep it weird in Austin! What’s weirder than a disease that kills the nerves in your hands and feet? Charcot-Marie-Tooth (CMT) is an inherited, peripheral…

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2nd Annual Carlos Juarez Memorial Charity Poker Tournament

October 20 @ 7:00 pm - October 21 @ 2:00 am
Parx Casino,
2999 Street Road Parx Poker Room
Bensalem, PA 19020 United States
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cmt carlos art

On February 21, 2016 our beloved Carlos passed onto a better place. He was a son, a brother, an uncle, a friend and an incredible poker player. We miss him dearly every day! Everyone that knew Carlos knows that his favorite pastime was playing poker. A shy person by nature, he came alive at the poker table. He was his most charismatic self while contemplating his next card move. That’s why we have no doubt he is just beyond the…

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3rd Tampa Bay Walk-n-Roll FUNdraiser and PICNIC

October 21 @ 10:30 am
MacFarlane Park, Pavilion #405,
1700 N. MacDill Ave
Tampa, FL 33607 United States
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2017 Banner

Join us as we Walk-n-Roll on the park’s shaded paved trails to raise research funds for the CMTA. This is our Family Fun event with plenty of activities for everybody: Picnic, Games, and more. Everyone and their family that is in group are welcome. We hope that you register and participate in the Fundraiser for the CMTA. Visit https://cmta.akaraisin.com/tampa to donate, register, start a team! For more information or to volunteer to help with the picnic, please contact Vicki at v_pollyea@mindspring.com…

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The 8th Annual CMTA Gala

October 24 @ 6:30 pm - 9:30 pm
Essex House,
160 Central Park South
New York, NY 10019 United States
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November 2017

2nd Annual Central Arkansas Walk 4 CMT

November 4 @ 10:00 am - 1:00 pm
Two Rivers Park Bridge,
4600 River Mountain Road
Little Rock, AR 72212 United States
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Arkansas walk

Join us for Central Arkansas’ 2nd Annual Walk4CMT! Saturday, November 4, 2017, at 10:00 a.m. located at Two Rivers Park Bridge in Little Rock, Arkansas. Register online at https://cmta.akaraisin.com/centralarkansas OR beginning at 9:00a.m. the day of the walk. Purchase raffle tickets for your chance to win some really great prizes and don’t forget about our fantastic selection of super yummy baked goods on sale! All proceeds from the Walk go to benefit research to find treatment of CMT. Your participation…

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Annual Westchester, NY CMTA Branch Luncheon

November 5 @ 12:00 am - 3:00 pm
Banchetto Feast,
75 S Middletown Rd
Nanuet, NY 10954 United States
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The Westchester, NY CMTA Branch will hold its Annual CMTA Luncheon and Fundraiser on Sunday, November 5, 2017 at Banchetto Feast, 75 West 59 & S. Middletown Road, Nanuet, NY 10954 at 12:00 noon. A buffet of delicious food will be offered, including salad, choice of several entrees, and assorted sodas and juices. Coffee, tea and desserts will also be provided. The cost is $50 per person, which includes a $20 donation to the CMTA. Children, ages 2-11 are welcome…

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November Branch Meeting – Guest Speaker, Dr. Barry Cooper!

November 18 @ 10:00 am
Emmaus Road Lutheran Church,
2185 Bristol Oxford Valley Rd
Levittown, PA 19057 United States
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Our special guest speaker, Dr. Barry Cooper, will present information on: CHARCOT MARIE TOOTH DISEASE MEDICAL AND NON-NEUROLOGIC ISSUES – IT’S MORE THAN JUST FUNNY WALKING AND TINGLY TOES! This interactive presentation and discussion will be of interest to individuals with CMT, as well as to friends and family members. Feel free to bring children – ALL are welcome! Help yourself to a hot cup of coffee and fresh baked goods while you’re here! Please call or email Tara or…

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Easton, Md Branch meeting

November 18 @ 10:00 am - 12:00 pm
Easton, Md Public Libray,
100 W. Dover Street
Easton, MD 21601 United States
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Easton Branch meeting on Saturday, November 18th at 10AM at the Easton Library. 

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November 2017 Branch Meeting

November 19 @ 2:00 pm - 4:00 pm
Towson Branch of the Baltimore County Public Library,
320 York Rd
Towson, MD 21204 United States
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Amy, Jeana, Kim

We will have another great CMTA Baltimore Branch meeting on Sunday, November 19th, 2017 at the Towson Branch of the Baltimore County Public Library.

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Moving Beyond the Pain

November 25 @ 10:00 am - 12:00 pm
Victoria Park Seniors Centre,
150 Albert St W
Fergus, Ontario N1M 1X2 Canada
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Join us to talk about Pain! Come out on Saturday, November 25 at 10am to hear someone speak from the Canadian Pain Coalition. To learn more about what they offer visit www.canadianpaincoalition.ca

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September 2017

September 25 @ 6:22 am
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