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March 2018

First Meeting for 2018

March 6 @ 6:00 pm - June 6 @ 7:30 pm
Massachusetts General Hospital,
55 Fruit St
Boston, MA 02114 United States
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Join Boston Branch members and Docs from MGH Center of Excellence for CMT on March 6th. At MGH Yawkey Building, Conference Room 4-820

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May 2018

Greenville, SC BBQ Fundraiser

May 19 @ 12:00 pm - September 15 @ 3:00 pm
Loyal Order of Moose,
114 Harris Rd
Piedmont, SC 29673 United States
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Greenville, SC CMTA Branch BBQ

What could be better than a barbecue in beautiful spring? ….Only a spring barbecue benefiting the CMTA! Please join us for this fun-filled BBQ & Auction!!! Our special guests will be Jeana Sweeney and Michelle Hayes from the CMTA. Yummy barbecue plates will be sold and we will have a silent auction with exciting items! Adults: $10.00 Children 3 – 12: $5.00 Children 2 and under: free Tickets can be purchased online here. For more information or to purchase tickets…

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June 2018

Seattle’s June 2nd Meet and Greet

June 2 @ 1:00 pm - 3:00 pm
University of Washington, Plaza Cafe,
See directions above.
Seattle, WA 98195 United States
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Join us for news about what’s going on in the CMT world. We will have clinicians who have an expertise in working with CMT patients. Directions: Plaza Cafe, Located at the back of the hospital on NE Columbia Rd. –The best way to get to the back of the hospital is to take NE Pacific St. (which runs in front of the hospital). –Turn onto 15th Ave NE, which will take you to NE Columbia St. –The best way to…

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The 2018 Oxford Funathlon

June 9 @ 9:00 am - 3:00 pm
Robert Morris Inn,
314 N Morris St
Oxford, MD 21654 United States
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Oxford Funathlon
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Future Dates

June 9 @ 10:30 am
St. Anthony’s Hospital basement auditorium,
1200 7th Ave N
Saint Petersburg, FL 33705 United States
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Still working on final plans for the rest of 2018. but we do have the following dates saved for our CMT Tampa Bay Area Branch Meetings: June 9 September 8 October? November 11 Once we have confirmed the speakers and events, more information will be provided.

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Central NJ CMTA Branch June Meeting!

June 9 @ 10:30 am - 12:30 pm
Jack Aaronson Conference Center, CentraState Medical Center,
Conference Room B 901 West Main Street
Freehold, NJ 07728 United States
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CMT table

It has been a while, time to regroup, reconnect, get to know each other again, and look toward the future! I am still working on a speaker, so please be patient. The main point is hearing from YOU and sharing whatever news, events, research developments, and anything else that comes to mind. Please join us for good conversation, good company, and plenty of information.

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Pittsburgh CMTA Branch Meeting

June 9 @ 1:30 pm - 3:30 pm
Kings Family Restaurants,
580 McClelland Rd Meeting Room
Canonsburg, PA 15317 United States
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Pittsburgh CMTA Branch meeting Meet others with CMT Update local resource directory Discuss fundraising ideas and options Food/drink orders to be paid individually

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Seattle Wine & Chocolate Fundraiser

June 15 @ 4:00 pm - 7:00 pm
Elevation Cellars,
19495 144th Ave NE
Woodinville, WA 98072 United States
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Join us on June 15 from 4:00 to 7:00 p.m. for our 4th Annual Wine and Chocolate Fundraiser sponsored by Elevation Cellars.  A world without CMT doesn’t need to be a hope or a promise, you can make it a reality by attending the event, donating or purchasing some really good wine. If you are not a fan of wine, treat yourself to a delightful evening filled with great food, yummy chocolates and a wonderful raffle!  You don’t want to…

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2018 Spring CMTA Meeting

June 16 @ 12:30 pm - 3:00 pm
Menorah Medical Center,
5721 W 119th St 2nd Floor, Classroom 2
Overland Park, KS 66209 United States
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Spring 2018 CMTA event ad

Join us this June as we welcome special guest Scott Kennedy, CO, from Hanger Clinic Prosthetics and Orthotics. Scott works directly with people needing braces to evaluate and recommend the best type of brace to meet their needs, then fit and adjust the brace as necessary.  Scott will be talking about different types of braces and how they can be used to meet specific needs common to CMT. He will also discuss the process for getting a brace and will…

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CMT Support Group Metting

June 23 @ 10:00 am
Victoria Park Seniors Centre,
150 Albert St W
Fergus, Ontario N1M 1X2 Canada
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Join us for a support group meeting where we can share and discuss in a friendly environment about CMT.

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Learn From the Experts: CMT

June 23 @ 2:00 pm - 5:00 pm
Saint Martin’s Episcopal School,
3110-A Ashford Dunwoody Rd
Atlanta, GA 30319 United States
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Special Learning Event: We are very excited to announce we have two very special guest speakers for our next meeting!  Dr. Nivedita Jerath, Clinical Director at the CMTA’s Center of Excellence at the University of Florida. Dr. Jerath trained under Dr. Shy in Iowa before moving to the Center of Excellence in Florida and she is coming to Atlanta specifically to meet with us!  Our second guest speaker is and Dr. Dale Strasser, MD, Emory Physical Medicine and Rehab Clinic.  Don’t…

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August 2018

The 5th Annual Cycle 4 CMT

August 26
Old Lantern Inn and Barn,
3260 Greenbush Rd
Charlotte, VT 05445 United States
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What? 5th Annual Cycle 4 CMT Event! Where? Old Lantern Inn and Barn, Charlotte VT When? Sunday, August 26, 2018 Why? Time is of the essence! Did you know that the symptoms of CMT progress over time? CMT can cause muscle atrophy, foot drop, hand weakness, knee dislocation, scoliosis, debilitating fatigue, pain, loss of feeling, diminished hearing, and life-threatening breathing problems. Who? YOU and your friends! How? Register to cycle, walk, attend the event today and ask your friends to join in on the fun. With this disease, a little effort goes a long way. All…

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September 2018

Seattle’s September 15th Meet and Greet

September 15 @ 1:00 pm - 3:00 pm
University of Washington Medical Center Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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cmta sticker

Celebrate CMT Awareness Month. We will feature special guests and learn about news in the CMTA world! Directions: Plaza Cafe Located at the back of the hospital on NE Columbia Rd. –The best way to get to the back of the hospital is to take NE Pacific St. (which runs in front of the hospital). –Turn onto 15th Ave NE, which will take you to NE Columbia St. –The best way to enter The Plaza Cafe is by driving around…

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Bucks Co Annual Buffet Dinner

September 15 @ 6:00 pm - 9:00 pm
Georgine’s Restaurant,
1320 Newport Rd
Bristol, PA 19007 United States
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Bucks County Buffet

The Bucks County Buffet is helping to  find a CURE for CMT! Proceeds go to the STAR research program, which brings together top researchers and pharmaceutical companies from around the world to help find treatments, and possibly a cure, for Charcot-Marie-Tooth disease! The evening will include a delicious buffet dinner, a cash bar, raffle baskets, a 50/50 raffle, door prizes and a chance to connect and learn more about CMT and the latest research efforts. Tickets: Adults: $30.00 Children 3…

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8th Annual Walk for CMT – Fergus fundraiser

September 30 @ 9:30 am - 11:30 am
Victoria Park Seniors Centre,
150 Albert St W
Fergus, Ontario N1M 1X2 Canada
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Join us for our 8th Annual Walk for CMT Fergus fundraiser on Sunday, September 30th at 9:30am. All are welcome to join this fun annual event. We will have prizes, kids activities, door prizes & More! Its a very inspiring morning – be sure to join us! We will walk/jog/run/bike the 2-5km track (if able). Fundraising is optional – fun is mandatory! If you would like to help us reach our $5,000 goal please email me for a pledge form…

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October 2018

The 9th Annual CMTA Gala

October 23 @ 6:30 pm - 9:30 pm
Essex House,
160 Central Park South
New York, NY 10019 United States
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November 2018

CMT Support Group Meeting

November 10 @ 10:00 am
Victoria Park Seniors Centre,
150 Albert St W
Fergus, Ontario N1M 1X2 Canada
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Join us for a CMT support group meeting where we will discuss CMT related topics in an open, friendly environment.

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May 2018

May 28 @ 12:52 am
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