CMTA Webinars

Beginning with “Everything You Wanted to Know About CMT and More,” a webinar presented by Dr. Michael Shy during CMT Awareness Month 2013, the CMTA has been conducting webinars intended to inform and educate everyone about CMT. Our presenters have been covering a wide variety of topics, but if you have a suggestion for a particular topic, please email info@cmtausa.org and let us know. Thank you, and we hope you enjoy the presentations.

Upcoming Webinars

Date
Scheduled Presenter(s)
Topic

2017
Schedule Coming Soon …

Previously Recorded Webinars

Previously recorded webinars can be viewed using by clicking on the images below:

Occupational Therapy and CMT

“Occupational Therapy and CMT” presented by Valery Hanks

Recorded March 23,2017

CMTA Advisory Board Member Valery Hanks, an occupational therapist at Vanderbilt Medical Center, will describe occupational therapy and how it benefits individuals with CMT.  She’ll also discuss ideas for various adaptive techniques and equipment and briefly touch on splinting to aid in hand function and driving hints.

Valery Hanks, OTR/L, C/NDT, has been a licensed occupational therapist since 2000. She received her bachelor’s degree in occupational therapy from the University of Tennessee Health Sciences Center. Valery has worked in both inpatient and outpatient rehabilitation settings over the course of her career. She has worked at the Pi Beta Phi Rehabilitation Institute at Vanderbilt since 2008. Valery has spent the last decade specializing in treatment of adults with acquired neurological impairments. She is certified in neuro-developmental treatment and the use of physical agent modalities. She has specialty training in vision and cognitive rehabilitation, as well as neurological treatment and splinting of the upper extremity.

Dancing to the Beat of a Different Drum: Meeting the Challenge of Life with CMT

“Dancing to the Beat of a Different Drum: Meeting the Challenge of Life with CMT” presented by Jonah Berger

Recorded December 15, 2016

CMTA Advisory Board Member Jonah Berger will discuss the various challenges of life with CMT, along with ways to meet and beat those challenges. He’ll give listeners mental, physical, and emotional tools to use in the fight to life with CMT and talk about CMT summer camp, teaching others about CMT, setting your mind compass, and the keys to finding the silver linings.

Jonah is 44 years old and lives in Colorado, where he runs a business called The Rhythm Within, working with kids and adults with special needs. He has CMTX and has enjoyed an interesting journey of challenge and wisdom. He is the author of He Walks Like a Cowboy, a book detailing the life and lessons of the CMT path and believes in the challenge and the wisdom that come from CMT!

Create Your Holiday Mindset with a Physical Therapist Spin!

“Create Your Holiday Mindset with a Physical Therapist Spin!” presented by Katy Eichinger and Amy Warfield

Recorded November 21, 2016

Katy Eichinger and Amy Warfield, both physical therapists and members of the CMTA Advisory Board, will help you get in the mood for the holidays, walking you through a holiday gift list for people affected by CMT.

Katy Eichinger, PT, DPT, NCS, is a physical therapist in the Neuromuscular Disease Unit at the University of Rochester. She received her Master of Science degree in Physical Therapy from Springfield College in Massachusetts. She received her doctorate in physical therapy from Upstate Medical University in Syracuse, New York. She also is a Neurologic Certified Specialist (NCS) and a Ph.D. candidate at the School of Nursing at the University of Rochester.

Amy Warfield, PT, DPT, is a physical therapist currently employed as an adjunct faculty member at Marymount University and the University of Maryland. She received her master’s degree in physical therapy from Ithaca College in New York and her doctorate in physical therapy from A.T. Still University in Arizona. She was certified by the American Physical Therapy Board of Specialties as a Neurologic Certified Specialist (NCS) from 2005-2015.

Bullying 101 - How to Prepare and Protect Your Child from Bullying

“Bullying 101 – How to Prepare and Protect Your Child from Bullying” presented by Sarah Kesty

Recorded October 11, 2016

October is National Bullying Prevention Awareness Month. How can you protect your children from bullying when you can’t go to school with them?

Sarah Kesty discusses proven strategies you and your child can use to lessen the likelihood of being bullied, to identify and address bullying school-wide, and to respond to bullying. Pick up tips to coach your child with go-to methods that stop bullies in their tracks. Learn how to address your child’s behavior if he or she bullies others. Finally, see how to adjust your and your child’s perspective to use any adversity to your advantage. Your child will be resilient and ready for the best school year yet!

Sarah, who has a master’s in special education from Sacramento State, has worked with individuals with a range of abilities for more than 10 years. She is a passionate advocate for people with disabilities and has two teaching credentials. She has experience teaching kindergarten through high school-aged students and coaching Special Olympics. Sarah has received numerous grants, most recently to launch a mentor program and create a disability-awareness and executive functioning curriculum for middle school students.

The Six Most-Often-Asked Questions about Bracing

“The Six Most-Often-Asked Questions about Bracing” presented by Ken Cornell

Recorded September 22, 2016

The six most-often-asked questions are:

  1. What will a brace do for me?
  2. How do I get a brace?
  3. How do I find an orthotist in my area?
  4. How does the orthotist know which brace will be best for me?
  5. How does a brace work?
  6. Will I need special shoes?

Over the past 30 years, Ken Cornell, CO, has developed a deep interest in the orthotic management of patients with CMT and he is now a nationally recognized authority on the subject. He earned his bachelor’s degree in biology at St. Anselm’s College in Manchester, New Hampshire, and completed his postgraduate work in orthotics and prosthetics at UCLA in 1980. Ken is a past president of the New England Chapter of the American Academy of Orthotists and Prosthetists. He is currently the orthotist at the CMTA Center of Excellence at MGH Boston and co-owns Cornell Orthotics and Prosthetics on Boston’s north shore.

Brace Yourself: Orthotics Q & A

“Brace Yourself: Orthotics Q & A” presented by David Misener

Recorded July 21, 2016

David Misener, BSc (HK), CPO, MBA, is an American Board Certified Prosthetist and Orthotist who has been practicing in Albany, New York, since 1998. He is one of three owners of Clinical Prosthetics and Orthotics, which has office locations ranging from Saratoga Springs to Poughkeepsie, New York. Originally from Guelph, Ontario, he received his bachelor’s of science degree in human kinetics from the University of Guelph. He did post-graduate work in orthotics and prosthetics at George Brown College, Toronto, Ontario.

Not only does David provide services to people with CMT, he has CMT. He was born with it, as was his son Ethan. David’s maternal grandfather was the first known family member with CMT, and David assisted his family in determining the genetic source by working with the Lupski Laboratory at Baylor College of Medicine.

Genetics and CMT: Q & A

“Genetics and CMT: Q & A” presented by Shawna Feely and Carly Siskind

Recorded June 1, 2016

Shawna Feely, MS, CGC, is a board-certified genetic counselor with a specialty in Neurogenetics and CMT. She was previously an Assistant Professor at Wayne State University (WSU), where she helped to provide genetic counseling services and coordinate the WSU CMT Clinic with Dr. Michael Shy. She has now moved to the University of Iowa (UI), where she is helping to establish a Center of Excellence with Dr. Shy. She has worked closely with the CMTA in the past, speaking at Patient/Family conferences, at the CMTA Branch Leader Conference, and at local support groups. She has worked with individuals and families who have CMT, and she has done research in this area, particularly involving CMT2A. She has enjoyed her work with the individuals and families she has met in clinic over the years, along with all the wonderful people who are committed to the CMTA.

Carly Siskind, MS, CGC, is a board-certified genetic counselor with a specialty in CMT. She is currently working at Stanford University and Hospital and at Lucile Packard Children’s Hospital. She previously worked for four years as a genetic counselor, assistant professor, and clinic coordinator in the CMT Clinic at Wayne State University. She is the project manager of the Inherited Neuropathies Consortium, part of the Rare Disease Clinical Research Network. Her involvement with the CMTA has included speaking at Patient/Family conferences, the CMTA Branch Leader Conference, writing articles for The CMTA Report, and being a resource for general genetic questions.

Through the Looking Glass: What We Can Do to Manage Our CMT Today

“Through the Looking Glass: What We Can Do to Manage Our CMT Today” presented by Kim Goodsell

Recorded April 26, 2016

Kim Goodsell is a skilled amateur geneticist who has devoted the last two decades to the study of her CMT and ARVC. Eric Topol, a cardiologist and director of the Scripps Translational Science Institute, calls her the “patient from the future” for her use of digital technology and online information to solve the riddle underlying her two rare diseases. Kim will share her journey down the rabbit hole of two genetic diseases—Charcot-Marie-Tooth and the heart disorder ARVC (arrhythmogenic right ventricular cardiomyopathy). Finding herself in a hall of locked doors, Kim found the key to her way out in the world of modern molecular medicine. She developed a treatment plan that not only attenuated, but reversed, much of her disability through lifestyle changes, diet, exercise and workarounds that mask and control her symptoms. Kim’s message is simple: How each of our CMT conditions will play out will not be determined by our genes alone and not all those wandering through the Wonderland of CMT need be lost.

CMT and Genetic Testing: Why Is It Important?

“CMT and Genetic Testing: Why Is It Important?” presented by Tom Winder, PhD, FACMG

Recorded February 16, 2016

Invitae medical geneticist Tom Winder has been involved with the genetic diagnosis of neuromuscular disorders for 15 years. Before joining Invitae, he was co-director at Prevention Genetics, where he oversaw neuromuscular testing. His efforts there led to the availability of affordable tests for inherited muscle and nerve disorders, many of which had previously been unavailable in North America. Tom completed his medical genetics training in 2002 at the University of Iowa and is certified by the American Board of Medical Genetics and Genomics in clinical molecular genetics. He was an assistant professor in the department of pathology at the University of Iowa; he was also co-director of the university’s molecular pathology laboratory until 2007.

Download transcript: CMT-and-Genetic-Testing-Why-Is-It-Important.pdf

Specific Functional Assessments to Enable More Effective Treatment(s) and Monitoring of Progression in Patients with CMT

“Specific Functional Assessments to Enable More Effective Treatment(s) and Monitoring of Progression in Patients with CMT” presented by James Nussbaum, PT, PhD, SCS, EMT

Recorded November 5, 2015

James Nussbaum is the Clinical and Research Director of ProHealth & Fitness PT OT, a physical and occupational therapy organization in New York.

Over the past 8 years, James’ clinical and research focus has been on the effects of innovative therapy interventions in medically complex patient populations. He has numerous ongoing IRB clinical trials, collaborating with many NYC physicians, hospitals, and agencies. James has lectured and presented his research around the world, and has a particular interest in finding ways to enhance and document patient improvements in ADLs, mobility, balance, function, and most importantly quality of life.

Foot Problems in CMT

“Foot Problems in CMT” presented by Greg Stilwell, DPM

Recorded September 28, 2015

Greg Stilwell is a board certified podiatrist diagnosed with CMT 1A, an inventor and a patent holder of the Barefoot Orthotic. He lectures internationally on foot and ankle topics including CMT. He is fluent in both in English and Spanish. He is a published author on MRI results of calf muscle atrophy in CMT and has begun a philanthropic site called CMTHope, which funds people with CMT who need braces, shoes or orthotics and cannot afford them. Greg is dedicated to helping podiatrists in the US, as well as in Latin America, recognize CMT and become current on various diagnostic and treatment options.

Care of the Pediatric Patient from a Physical Therapy Perspective

“Care of the Pediatric Patient from a Physical Therapy Perspective” presented by Katy Eichinger, PT, DPT, NCS, and Amy Warfield, PT, DPT

Recorded August 27, 2015

Katy Eichinger is a physical therapist in the Neuromuscular Disease Unit at the University of Rochester. She received her Master of Science degree in Physical Therapy from Springfield College in Massachusetts and her Doctorate in Physical Therapy from Upstate Medical University in Syracuse, New York. She also is a Neurologic Certified Specialist (NCS) and a PhD Candidate at the School of Nursing at the University of Rochester.

Amy Warfield is a physical therapist who received her MasterRsquo;s Degree in Physical Therapy from Ithaca College in New York and her Doctorate in Physical Therapy from A.T. Still University in Arizona. She is an adjunct faculty member at the University of Maryland School of Medicine with the Department of Physical Therapy and Rehabilitation Science.

Back to School with the CMTA!

“Back to School with the CMTA!” presented by Sarah Kesty

Recorded July 16, 2015

Sarah Kesty has worked with individuals with a range of disabilities for over ten years. She has a Masters in Special Education from Sacramento State and two teaching credentials. She has experience teaching Kindergarten through high school aged students and coaching Special Olympics. Sarah has spoken to groups of teachers, parents, and students about disability awareness, advocacy, and maximizing life satisfaction. Sarah writes for several publications, including The Special EDucator, a publication for California’s special educators. She shares inspiring stories on her website, www.sarahkesty.com, and has recently written a book for children. Sarah has CMT and can deeply empathize with both students and parents navigating the school support systems. She is honored to help CMTA members make the best of their children’s school experiences.

The Silver Lining—Finding the Benefits in the Challenge

“The Silver Lining—Finding the Benefits in the Challenge” presented by Jonah Berger

Recorded June 18, 2015

Jonah Berger is 42 years old and lives in Colorful Colorado. He runs a business called The Rhythm Within, working with kids and adults with special needs. He has been diagnosed with CMTX and has enjoyed an interesting journey of challenge and wisdom. He is the author of He Walks Like A Cowboy, a book detailing the life and lessons of the CMT path. He is a proud member of the CMTA Advisory Board, and believes in the challenge and the wisdom that come from CMT!

Bracing vs. Surgery

“Bracing vs. Surgery” presented by Glenn B. Pfeffer, MD

Recorded May 28, 2015

Dr. Pfeffer is Director of the Foot and Ankle Center at Cedars-Sinai Medical Center. He is also a Co-director of the Hereditary Neuropathy Program and Co-director of the Cedars-Sinai/USC Glorya Kaufman Dance Medicine Center. Dr. Pfeffer has written numerous scientific articles on orthopaedics and has edited seven academic textbooks on the foot and ankle. He has been treating foot and ankle problems in patients with Charcot-Marie-Tooth disease for 25 years. He is a past president of the American Orthopaedic Foot and Ankle Society, and recently served as president of the California Orthopaedic Association. Dr. Pfeffer is frequently interviewed on foot and ankle topics, and has been featured on CNN, Dancing with the Stars, Dateline NBC, Good morning America, and The New York Times.

Answering Your Questions: Bracing and CMT

“Answering Your Questions: Bracing and CMT” presented by David B. Misener, BSc (HK), CPO, MBA

Recorded May 14,2015

David B. Misener, BSc (HK), CPO, MBA, is an American Board Certified Prosthetist and Orthotist who has been practicing in Albany, NY, since 1998. He is one of three owners of Clinical Prosthetics and Orthotics, which has office locations ranging from Saratoga Springs to Poughkeepsie, NY. Originally from Guelph, Ontario, he received his Bachelor of Science in Human Kinetics from the University of Guelph. He then went onto post-graduate work in Orthotics and Prosthetics at George Brown College, Toronto, Ontario.

Not only does David provide services to people with CMT, he has CMT. He was born with it as was his son Ethan. David’s maternal grandfather was the first known family member with CMT, and David assisted his family in determining the genetic source by working with the Lupski Laboratory at Baylor College of Medicine. He looks forward to contributing to the CMT Association and is excited to be part of a great team.

CMT-Continue Moving Today! Tools to Support You!

“CMT-Continue Moving Today! Tools to Support You!” presented by Elizabeth K. Misener, PhD, LMSW

Recorded April 22, 2015

Elizabeth K. Misener, PhD, LMSW, is a licensed master social worker with New York State. She provides coaching on a wide range of issues such as depression, stress management, anxiety, life-work balance and relationships. As a trained social worker, she supports individuals on their journey of self-discovery through self-reflection and goal setting. Among Elizabeth’s areas of specialization are helping people to improve relationships, reduce stress, encourage personal growth, enhance parenting skills, facilitate decision making, manage time, bolster motivation, clarify objectives, and develop concrete, attainable goals. She has been trained in the technique of Problem Solving Therapy, which is an evidence based short-term intervention for people struggling with depression.

Elizabeth and her husband David are the proud parents of two young boys aged 8 and 6. Her husband David was born with CMT 1B, and many of his immediate family members also have CMT 1B. Ethan, her 8 year old, was also born with CMT 1B. She is excited to be part of the CMTA community.

Hand Surgery to Restore Thumb Mobility and Enhance Function in Children with CMT

“Hand Surgery to Restore Thumb Mobility and Enhance Function in Children with CMT” presented by Timothy Estilow, OTR/L

Recorded March 26, 2015

Tim Estilow, OTR/L, is an Occupational Therapist at The Children’s Hospital of Philadelphia. He provides outpatient-based therapy services, interdisciplinary specialty clinic consultations/evaluations, and participates in Clinical Research. His specialty practice includes the use of splinting, dynamic movement orthosis, and aquatic therapy interventions for patients with neuromuscular disease. He has participated as an evaluator in Clinical Trials for CMT, DMD, SMA, MS and other neuromuscular/neurological diseases. He is currently an investigator in the CMT natural history study, and he contributed to the development of the CMT Pediatric Scale (CMTPedS) including the establishment of validity and reliability. His primary interests are improving hand function and balance to improve independence and quality of life for individuals with CMT.

The Things You Can Control: Taking Charge of CMT

“The Things You Can Control: Taking Charge of CMT” presented by Bethany Meloche, CMTA Director of Social Media

Recorded January 28, 2015

Bethany Meloche, Director of Social Media, began working with the CMTA as a volunteer in 2010. As a result of her active participation she was asked to join the CMTA Advisory Board as a youth liaison. She has worked as an advocate for all Youth services within the CMTA. A member of the Social Media generation, and a student of its trends, Bethany helped edit the book The Ultimate Guide to Facebook Advertising, published by the Entrepreneur Press. She has also been spotted on one or two occasions hanging out at Facebook headquarters in Menlo Park. When not working with the CMT community, Bethany may be found feeding squirrels on the UC Berkeley campus, where she completed a degree in Nutritional Science. Bethany has CMT1A and runs the blog www.BareYourBrace.com.

Where We Are on Research

“Where We Are on Research” presented by Patrick A. Livney, CMTA Chief Executive Officer

Recorded August 28, 2014

CMTA CEO Pat Livney gives an overview on where we are with our research, the different types of CMT being researched and what you can do to help.

Before Patrick took over the role of the CMTA’s CEO, he was Chairman and President of the CMTA’s Board of Directors.

The Basics of Balance

“The Basics of Balance” presented by Katy Eichinger, PT, DPT, NCS

Recorded July 30, 2014

Katy Eichinger, PT, DPT, NCS, is a physical therapist in the Neuromuscular Disease Unit at the University of Rochester. She received her Master of Science degree in Physical Therapy from Springfield College in Massachusetts. She received her Doctorate in Physical Therapy from Upstate Medical University in Syracuse, New York. She also is a Neurologic Certified Specialist (NCS).

Dr. Eichinger is involved in the clinical care of adult and pediatric patients with neuromuscular diseases. Additionally, she is part of the neuromuscular research team and is involved in natural history studies and clinical trials involving patients with Charcot-Marie-Tooth disease, myotonic dystrophy, and facioscapulohumeral dystrophy. She has been involved with clinical evaluator training and assisted in preparing the manual for the pediatric assessment for the CMT natural history study. Her interests are in outcome measures, health and wellness, and balance.

Answering Your Questions about Bracing and CMT

“Answering Your Questions about Bracing and CMT” presented by David B. Misener, BSc (HK), CPO, MBA

Recorded May 30,2014

David B. Misener, BSc (HK), CPO, MBA, is an American Board Certified Prosthetist and Orthotist who has been practicing in Albany, NY, since 1998. He is one of three owners of Clinical Prosthetics and Orthotics, which has office locations ranging from Saratoga Springs to Poughkeepsie, NY. Originally from Guelph, Ontario, he received his Bachelor of Science in Human Kinetics from the University of Guelph. He then went onto post-graduate work in Orthotics and Prosthetics at George Brown College, Toronto, Ontario.

Not only does David provide services to people with CMT, he has CMT. He was born with it as was his son Ethan. David’s maternal grandfather was the first known family member with CMT, and David assisted his family in determining the genetic source by working with the Lupski Laboratory at Baylor College of Medicine. He looks forward to contributing to the CMT Association and is excited to be part of a great team.

Genetics and CMT: Q & A

“Genetics and CMT: Q & A” presented by Shawna Feely, MS, CGC, and Carly Siskind, MS, CGC

Recorded April 16,2014

Shawna Feely, MS, CGC, is a board certified genetic counselor with a specialty in Neurogenetics and CMT. She was previously an Assistant Professor at Wayne State University (WSU), where she helped to provide genetic counseling services and coordinate the WSU CMT Clinic with Dr. Michael Shy. She has now moved to the University of Iowa (UI), where she is helping to establish a Center of Excellence with Dr. Shy. She has worked closely with the CMTA in the past, speaking at Patient and Family conferences, at the CMT SAG facilitator conference, and at local support groups. She has worked with individuals and families who have CMT for the past 6 years, and she has done research in this area, particularly involving CMT Type 2A (CMT2A). She has immensely enjoyed her work with the individuals and families that she has been able to meet in clinic over the years, along with all the wonderful people who are committed to the CMTA. She is looking forward to continuing this work at the UI and as a new member of the CMTA Advisory Board.

Carly Siskind, MS, CGC, is a board certified genetic counselor with a specialty in CMT. She is currently working at Stanford University and Hospital and Lucile Packard Children’s Hospital. She previously worked for four years as a genetic counselor, assistant professor, and clinic coordinator at Wayne State University in the CMT Clinic. She is the project manager of the Inherited Neuropathies Consortium, part of the Rare Disease Clinical Research Network. Her involvement with the CMTA has included speaking at Patient and Family conferences, CMT SAG facilitator conference, writing articles for the CMTA Report, and being a resource for general genetics questions. She is very happy to be able to lend her expertise as a member of the Advisory Board.

Wanna Go Out With Me and My Braces or Dating and CMT

“Wanna Go Out With Me and My Braces or Dating and CMT” presented by Jonah Berger

Recorded March 20, 2014

Jonah Berger is 42 years old and lives in Colorful Colorado. He runs a business called The Rhythm Within, working with kids and adults with special needs. He has been diagnosed with CMTX and has enjoyed an interesting journey of challenge and wisdom. He is the author of He Walks Like A Cowboy, a book detailing the life and lessons of the CMT path. He is a proud member of the CMTA Advisory Board, and believes in the challenge and the wisdom that come from CMT!

Why People with CMT Get Prescribed AFOs and What the Orthotics are Supposed to Do

“Why People with CMT Get Prescribed AFOs and What the Orthotics are Supposed to Do” presented by Sean McKale, CO, LO

Recorded March 6, 2014

Sean McKale, CO, LO, is the practice manager of Midwest Orthotic and Technology Center in Chicago, IL. Sean began as an athletic trainer who decided his love of working with his hands would lead him to making furniture. Fortunately a mentor of his told him about the field of orthotics. He has worked in various clinical settings, but through his time spent at the Rehabilitation Institute of Michigan and his relationship with Dr Michael Shy, he has become increasingly passionate about helping patients with neuromuscular involvement. Sean has spoken at numerous national Orthotic and Prosthetic conferences about dynamic AFOs, CMT, unique case presentations, and the management of pediatric patients. He enjoys working with CMT patients because he knows he is really helping improve someone’s daily life.

Parenting with Pleasure: One Mother’s Perspective on Parenting a Child with CMT

“Parenting with Pleasure: One Mother’s Perspective on Parenting a Child with CMT” presented by Elizabeth K. Misener, PhD, LMSW

Recorded February 25, 2014

Elizabeth K. Misener, PhD, LMSW, is a licensed master social worker with New York State. She provides coaching on a wide range of issues such as depression, stress management, anxiety, life-work balance and relationships. As a trained social worker, she supports individuals on their journey of self-discovery through self-reflection and goal setting. Among Elizabeth’s areas of specialization are helping people to improve relationships, reduce stress, encourage personal growth, enhance parenting skills, facilitate decision making, manage time, bolster motivation, clarify objectives, and develop concrete, attainable goals. She has been trained in the technique of Problem Solving Therapy, which is an evidence based short-term intervention for people struggling with depression.

Elizabeth and her husband David are the proud parents of two young boys aged 8 and 6. Her husband David was born with CMT 1B, and many of his immediate family members also have CMT 1B. Ethan, her 8 year old, was also born with CMT 1B. She is excited to be part of the CMTA community.

Skilled Physical Therapy and Exercise to Improve Function and Quality of Life in CMT

“Skilled Physical Therapy and Exercise to Improve Function and Quality of Life in CMT” presented by James Nussbaum, PT, PhD, SCS, EMT

Recorded December 19, 2013

James Nussbaum, PT, PhD, SCS, EMT, is the Clinical and Research Director of ProHealth & Fitness PT, OT, a physical and occupational therapy organization in New York. His career was fueled by his experiences as a physical therapy patient and by working for Johnson and Johnson for a number of years as a health and fitness specialist. James returned to school and graduated from Touro College with a Masters of Science in Physical Therapy. He later earned a PhD in pathokinesiology, and then board certification as a Sports Certification Specialist. James sits on numerous clinical and academic advisory boards and is an active member of the NYS Task Force on Fall Prevention.

A Step in the Right Direction

“CMT, Obamacare, the ADA, and You: What Every CMT Patient Should Know While at Work” presented by Michael Needlemn, Esq.

Recorded November 13, 2013

Michael Needleman has been practicing law in Pennsylvania and New Jersey for about nine years, and is awaiting admission to the Washington, D.C. bar. He is licensed to practice in the United States District Courts for the District of New Jersey, the Eastern District of Pennsylvania, the Western District of Pennsylvania, and the United States Court of Appeals for the Third Circuit. He has developed a sort of specialty practice in the employment discrimination area, and within that, of handling disability discrimination claims. He also concentrates his practice on insurance coverage issues. In terms of his personal involvement with CMT, there is a fairly extensive family history of CMT. In fact, both he and his brother have confirmed CMT diagnoses. His brother first starting showing signs at 11 or 12, while he was diagnosed at 22.

Everything You Wanted to Know About CMT and More

“Everything You Wanted to Know About CMT and More” presented by Michael E. Shy, MD

Recorded September 9, 2013

Dr. Michael Shy is a professor of neurology, pediatrics and neuroscience in the Department of Neurology at the University of Iowa in Iowa City. He’s been a leading researcher of CMT issues since 1990 and a member of the CMTA Scientific Advisory Board since 2001. He became its chairman in 2007. Prior to joining the University of Iowa, Dr. Shy was a professor of neurology at the School of Medicine at Wayne State University in Detroit, Michigan, where he headed up an inherited neuropathies consortium, a $6.25 million program focused on the science of inherited neuropathies..