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First Meeting for 2018
Join Boston Branch members and Docs from MGH Center of Excellence for CMT on March 6th. At MGH Yawkey Building, Conference Room 4-820 Find out more »
Portland,Oregon Area CMTA Branch Meeting
Our meeting will be a joint time with both the daytime and evening groups. We are excited to announce our special guest speaker, OHSU Neurologist, Dr. Karam. Dr. Karam along with two of his associates will be speaking to us about updates on CMT, current trials taking place and future CMT studies. The presentation will be followed by a Q & A. We will assemble in the foyer at 3:45. Meeting begins at 4:00 p.m. The meeting will be held… Find out more »
April San Diego CMTA Branch Meeting
We are very excited to announce a special guest speaker from the CMTA’s Center of Excellence at Cedars-Sinai, Dr. Richard A Lewis! Dr. Lewis is a CMT expert and Co-Clinical Director at the CMTA’s Center of Excellence. He will be sharing the latest news on CMT followed by a Q & A time where he can answer YOUR questions! This event is hosted by the San Diego CMTA Branch. The San Diego CMTA Branch is for all those who have… Find out more »
Spring Meeting!
Meetings is open to anyone with CMT and their loved ones! We will have a time to review items from the previous meeting and discuss upcoming events for the branch. There will be time at the end of the meeting to talk and get to know each other better! Can’t wait to see everyone there (: Find out more »
3rd Annual Fishing for a Fix!
To benefit the CMTA STAR Program and Camp Footprint! Clarks Creek, Stackpole Children’s Area 201 Clarks Valley Road in Dauphin, PA Sunday, April 29th 2018 (Rain Date: Sunday, May 6th) 8:00am-1:00pm Must be 12 or under to participate – All ages encouraged to attend Trophy for top three trout by length, as well as small prize for first fish caught of the day & first palomino caught of the day & Introducing the Jordan Mermelstein Golden Trout Award for the… Find out more »
Benefits of Pilates & Gyrotonic for those with CMT- New Mexico Branch
For over 15 years, Momentum has been a leading Pilates and Gyrotonic studio in New Mexico. Momentum offers multiple movement methodologies as an integrative approach to health and wellness, and they have seen great success working with clients that have peripheral neuropathy conditions and other neuromuscular disorders. We will provide an overview of both Pilates and Gyrotonic, and demonstrate some of the specific applications that we have used in the past with clients dealing with neuromuscular issues. All are welcome, and… Find out more »
RTP Ice Cream Social!
Greetings! I hope you are enjoying these warm Spring days. We had an informative meeting in February, with Jean Bridges, physical therapist at Duke, who talked about exercise and activities for people with CMT. If you missed the meeting, you can see her presentation on our Facebook page. Our next meeting, on Saturday, May 5, at 1:30, will be a fun event, an Ice Cream Social! We want this to be an informal, fun time, where we can enjoy yummy… Find out more »
Panel Presentation by Certified Orthotists
●90 minute Panel Presentation Orthotics & Prosthetics ●Guest Presenters Dave Clark, Certified Orthodist, Fairview Clinics, general practice; Blaine, MN, & Wyoming, MN Luke Rodgers, Certified Orthodist, Fairview Clinics, Dr. Walk’s Center of Excellence specialty programs, general practice, Wyoming, MN Patrick Borer, TurboMed AFO, Area Manufacture’s Representative *Informative meeting designed to educate CMTers with the best product available for their personal needs. *Newly promoted TurboMed AFO product will be displayed & indorsed by two users of the TurboMed AFO products from… Find out more »
The CMTA is coming to Lafayette, Louisiana!
Join the CMTA’s Jeana Sweeney, Director of Community Engagement and Michelle Hayes, National Manager of Branch and Community Relations, for an informative talk on CMT. They will talk about the CMTA, resources, research, ways to get involved and more! If you, or someone you know, has CMT, don’t miss this chance to meet Jeana, Michelle and your fellow CMTers. Let us know you’ll be coming … Find out more »
The CMTA is Coming to New Orleans!
Join the CMTA’s Jeana Sweeney, Director of Community Engagement and Michelle Hayes, National Manager of Branch and Community Relations, for an informative talk on CMT. They will talk about the CMTA, resources, research, ways to get involved and more! If you, or someone you know, has CMT, don’t miss this chance to meet Jeana, Michelle and your fellow CMTers. Let us know you’ll be coming … Find out more »
Now You See It… Now You Don’t an interactive “who dunnit?” CMTA Fundraising Event
Join us to help solve the greatest crime of our time! This special afternoon begins with appetizers followed by an interactive show–Now You See It, Now You Don’t! Diamonds Are a Crook’s Best Friend. There will be mystery, intrigue and a thief amongst us! Can you help us unravel the sordid tales of clues, alibis and excuses from other guests? Who Dunnit? Can you guess or are you the thief? Who is the carat caper, and who will solve the… Find out more »
Grand Rapids, MI CMTA Branch Dorr to Eden Trip
Join us to tour the farm at Dorr to Eden and see firsthand the amazing services offered there. The ground is even and flat, and we will have chairs available. Come brush some of the mini horses and feel the difference these experiences can make in your life. Hope to see you there, Cabrielle Find out more »
Bi-Monthly Branch Meeting in Bucks County, PA
The Bucks County, PA CMTA Branch welcomes all those who have Charcot-Marie-Tooth disease, as well as their friends and families. The May meeting will feature information regarding local and national events of interest to those with CMT, research updates, opportunities for sharing/discussion, Q & A, and planning for CMTA Awareness Month 2018 and our highly-anticipated Buffet Dinner fundraiser! Meet others in our area who understand what it’s like to live with CMT and share resources, ideas, and personal experiences. Coffee… Find out more »
$10
Greenville, SC BBQ Fundraiser
What could be better than a barbecue in beautiful spring? ….Only a spring barbecue benefiting the CMTA! Please join us for this fun-filled BBQ & Auction!!! Our special guests will be Jeana Sweeney and Michelle Hayes from the CMTA. Yummy barbecue plates will be sold and we will have a silent auction with exciting items! Adults: $10.00 Children 3 – 12: $5.00 Children 2 and under: free Tickets can be purchased online here. For more information or to purchase tickets… Find out more »
Hops for Hope-A Columbia,SC Branch Fundraiser
Come join us on Saturday, May 19th from 4pm-9pm at the Brewery for Hops for Hope! Enjoy food, a special beer, and a silent auction along with some other surprises! Help us put a spotlight on Charcot-Marie-Tooth Disease! See you there! Find out more »
$20
Bingo Night Fundraiser
Join us for a fun night of Bingo to benefit the Charcot-Marie-Tooth Association! We will play 20 games and have some amazing prizes! Three-card tickets are $20 in advance if purchased online and $25 at the door. Additional bingo cards will be available for sale at the event. In addition to bingo, we will have food, baked goods and refreshments for purchase, as well as special games, a 50/50 raffle and more! For more information or to purchase tickets in… Find out more »
Seattle’s June 2nd Meet and Greet
Join us for news about what’s going on in the CMT world. We will have clinicians who have an expertise in working with CMT patients. Directions: Plaza Cafe, Located at the back of the hospital on NE Columbia Rd. –The best way to get to the back of the hospital is to take NE Pacific St. (which runs in front of the hospital). –Turn onto 15th Ave NE, which will take you to NE Columbia St. –The best way to… Find out more »
Future Dates
Still working on final plans for the rest of 2018. but we do have the following dates saved for our CMT Tampa Bay Area Branch Meetings: June 9 September 8 October? November 11 Once we have confirmed the speakers and events, more information will be provided. Find out more »
The 5th Annual Cycle 4 CMT
What? 5th Annual Cycle 4 CMT Event! Where? Old Lantern Inn and Barn, Charlotte VT When? Sunday, August 26, 2018 Why? Time is of the essence! Did you know that the symptoms of CMT progress over time? CMT can cause muscle atrophy, foot drop, hand weakness, knee dislocation, scoliosis, debilitating fatigue, pain, loss of feeling, diminished hearing, and life-threatening breathing problems. Who? YOU and your friends! How? Register to cycle, walk, attend the event today and ask your friends to join in on the fun. With this disease, a little effort goes a long way. All… Find out more »
Seattle’s September 15th Meet and Greet
Celebrate CMT Awareness Month. We will feature special guests and learn about news in the CMTA world! Directions: Plaza Cafe Located at the back of the hospital on NE Columbia Rd. –The best way to get to the back of the hospital is to take NE Pacific St. (which runs in front of the hospital). –Turn onto 15th Ave NE, which will take you to NE Columbia St. –The best way to enter The Plaza Cafe is by driving around… Find out more »
$30
Bucks Co Annual Buffet Dinner
The Bucks County Buffet is helping to find a CURE for CMT! Proceeds go to the STAR research program, which brings together top researchers and pharmaceutical companies from around the world to help find treatments, and possibly a cure, for Charcot-Marie-Tooth disease! The evening will include a delicious buffet dinner, a cash bar, raffle baskets, a 50/50 raffle, door prizes and a chance to connect and learn more about CMT and the latest research efforts. Tickets: Adults: $30.00 Children 3… Find out more »