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Portland Branch Daytime Meeting

January 19 @ 11:30 am - 1:00 pm
Elmer’s Restaurant,
10001 N.E. Sandy Blvd.
Portland, OR 97217 United States
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We have reserved a quieter space at Elmer’s for our January meeting. Jon Weaver, a regional manager for Allard, will be joining us and will have a guest orthotist with him to talk about bracing and to answer our questions. This will be a no host lunch. Hope to see you there! Debbie McHugh 503-310-7229 Find out more »

Portland Branch Evening Meeting

January 19 @ 7:00 pm - 8:30 pm
Village Baptist Church,
330 S.W. Murray Blvd.
Beaverton, OR 97005 United States
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Jon Weaver, a regional manager for Allard, will be joining us and will have a guest orthotist with him to talk about bracing and to answer our questions. Please join us at 7:00 p.m. Hope to see you there! Village Baptist Church 330 S. W. Murray Blvd Beaverton, OR. 97005 Call Debbie if you have any questions. 503-310-7229 Find out more »

January Meeting for Bucks County CMTA Branch

January 21 @ 10:00 am
Emmaus Road Lutheran Church,
2185 Bristol Oxford Valley Rd
Levittown, PA 19057 United States
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Bimonthly Meeting Agenda for 1/21: Announcements regarding our special guest speakers for March, May, and July 2017 meetings! Julie, a licensed psychologist and school psychologist, will talk about CMT and Schools – how to obtain services (e.g., physical therapy; adapted Physical Education), accommodations & modifications in the classroom (e.g., assistive technology, extra time on tests/exams, etc.) for students with CMT. If that topic does not relate to you, feel free to also bring your questions about emotional issues related to… Find out more »

January branch meeting

January 21 @ 1:00 pm - 3:00 pm
Kline Library,
530 S 29th St
Harrisburg, PA 17104 United States
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Jan17 meeting
The Harrisburg Area CMTA Branch Welcomes all interested in learning more about Charcot-Marie-Tooth Disease and bracing options to join us for our January branch meeting! We will have special guest Laurie Lasky joining us to show us some dynamic bracing options as the Northeast District Manager for Allard USA! Allard is a corporate sponsor of the CMTA and they are committed to developing products that provide people with disabilities the opportunity to function better and improve their quality of life!… Find out more »

Join us for a tour at Badger Orthotics

January 28 @ 10:00 am - 12:00 pm
Badger Orthotics,
514B Wells St
Delafield, WI 53018 United States
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Badger-Orthotics3
John Huenink, pedorthotist and owner of Badger Orthotics, has invited us to join him in his work-space/factory for a tour and presentation. John manufactures orthotics for a wide variety of clients, including Katie Malone, cross country runner at DSHA, and member of our group. A runner and cyclist, John is interested in helping folks walk, ride, run, or whatever you like to the best of their ability. He’s interested in meeting us and learning more about how he might help… Find out more »

Genetics and CMT

January 28 @ 1:00 pm - 3:00 pm
Rockingham County Moose Lodge 2713,
2455 S Main St
Harrisonburg, VA 22801 United States
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genedx
Join us for our first meeting of the New Year! We will welcome guest speaker, Ryan Finkelstein with GeneDx. He will provide us with and overview of genetic testing, insurance, payment options and more. Be sure to bring your questions, this is a meeting you won’t want to miss! Find out more »

Madison Branch 2017 KICK OFF MEETING

February 9 @ 6:30 pm - 8:00 pm
First Weber, Inc. Corporate Office,
5250 E Terrace Drive Suite I
Madison, WI 53718 United States
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Molecular_Cellular_Pharmacology
Please join us for our 2017 KICK OFF MEETING We will welcome Dr. John Svaren, PHD Advisory Board Member of the CMTA Dr. Svaren is an Associate Professor in the Department of Comparative Biosciences at the University of Wisconsin and he serves as Director of the Celluar and Molecular Neuroscience core at the UW Waisman Center, where his laboratory is located. Since 2000, he has focused his research program on the genetic basis of peripheral myelination and the disruptions found… Find out more »

Custom Shoes by Davis Foot Comfort Center

March 11 @ 11:00 am - 1:00 pm
Stanford Neuroscience Health Center,
213 Quarry Rd
Palo Alto, CA 94304 United States
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Shoe
Arnie Davis of Davis Foot Comfort Center in San Francisco will be presenting on finding the right shoes and his work with custom adjustments for shoes to address our funky feet. Arnie’s presentation at the Stanford CMT conference was very well received. Arnie will adapt his presentation to cover some new content not featured at the Stanford conference in a more interactive format more suitable for a smaller audience. Find out more »

March Meeting for the Bucks County CMTA Branch

March 18 @ 10:00 am
Emmaus Road Lutheran Church,
2185 Bristol Oxford Valley Rd
Levittown, PA 19057 United States
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A special guest speaker will present to the group on a topic of interest! Agenda to be announced in a future email for those who have signed up to receive notifications from the Bucks County CMTA Branch! Refreshments will be served! Find out more »

CMTA Springfield Mo Meeting

April 8 @ 4:00 pm - 6:00 pm
The Library Center “story hour meeting room”,
4653 S. Campbell Ave.
Springfield, MO 65810 United States
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library center
The April meeting is going to be packed full of FUN! We will a few guest speaker this time. First, we will have ladies from Young Living to explain the natural approach for pain relief using essential oils. We will also be having information from our local orthotics company on AFOS/Bracing/Shoes. We will have loads of printed information on CMT and the CMTA and goody bags! We hope to see you there.  Please RSVP ASAP so we know how many goody… Find out more »

2nd Annual Fishing for a Fix!

April 23 @ 8:00 am - 1:00 pm
Clark’s Creek Children’s Area,
201 Clarks Valley Road
Dauphin, PA 17018 United States
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Must be 12 or under to participate. All ages encouraged to attend Trophy for top three trout by length, as well as small prize for first fish caught of the day & first palomino caught of the day $20 Registration fee includes T-shirt & lunch. T-shirts available in Adult XS-2XL Baked goods and grilled items available for sale, Silent Auction, Raffle Prizes Contact Erin at bbspetpantry@yahoo.com or call 717-379-7504 Register and donate at www.firstgiving.com/CMTA/FishingForAFix If making a donation by mail,… Find out more »

Acupuncture for CMT

May 13 @ 11:00 am - 1:00 pm
Stanford Neuroscience Health Center,
213 Quarry Rd
Palo Alto, CA 94304 United States
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Christy
Christy Vitiello. Christy has been Ori Bash’s (co-leader of the branch) acupuncturist for the past two years. Ori has found her treatments to be helpful in improving some of his CMT symptoms, including cold feet and legs, numbness, and low energy. Her practice is in San Francisco. Christy will share with us the benefits of acupuncture for peripheral neuropathy and some recommendations for finding the right acupuncturist for you. http://www.cv-acupuncture.com/ Find out more »

4th Annual Oxford Biathlon

May 21 @ 9:00 am - 1:00 pm
Oxford Biathlon,
TBD
Oxford, Maryland, MD 21654 United States
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image
The 4th Annual Oxford Biathlon will take place on May 21st, 2017 in beautiful Oxford, MD. Events will include a one mile swim, a 20 mile bike ride, walks of varying lengths, and lunch on the waterfront. Please join us! Find out more »
$35

CMTA Patient/Family Conference in Houston, TX, June 25

June 25 @ 9:00 am - 2:30 pm
Memorial Hermann Memorial City Medical Center,
929 Gessner Rd, 12th Fl
Houston, TX 77024 United States
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World-famous geneticist with CMT to speak , the geneticist who discovered the first gene associated with Charcot-Marie-Tooth disease while looking for the cause of his own CMT, will be speaking about CMT and genetics at the CMTA Patient/Family Conference in Houston on Saturday, June 25.  Sponsored by the CMTA, Hanger Orthotics, and the Memorial Hermann Health Care System, the conference will take place at the Memorial Hermann Memorial City Medical Center from 9 a.m. – 1:30 p.m. If you or… Find out more »

3rd Annual Walk to Run 4 CMT

September 16 @ 9:00 am - 2:00 pm
Mitchell Park,
600 E Meadow Dr
Palo Alto, CA 94303 United States
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2nd Annual Walk Group Pic
Join us for the 3rd Annual Walk to Run 4 CMT. Over the past two years, we’ve raised over $55,000 in each year to help fund research for the first treatment for CMT. Be a part of our success in 2017! More details to follow. Find out more »

Adaptive Yoga

November 11 @ 11:00 am - 1:00 pm
Stanford Neuroscience Health Center,
213 Quarry Rd
Palo Alto, CA 94304 United States
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Amy
Our very own branch member, Amy Norris, will lead an adaptive yoga session. More details to follow. Find out more »

January 16 @ 9:20 am
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