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March 2019

Grand Rapids MI CMTA Branch March Meeting: CMT and Fitness

March 20 @ 6:30 pm - 8:00 pm
Mary Free Bed Rehabilitation Hospital,
235 Wealthy St SE
Grand Rapids, MI 49503 United States
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Grand Rapids MI CMTA Branch

Please join us for our March meeting of the Grand Rapids, MI CMTA Branch. We will be learning about the importance of exercise in managing CMT. Bring your ideas and questions and any local resources you use to help you maintain the muscles you have! All are welcome! We cannot wait to see you all!

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Portland, OR CMTA Branch Meeting with Guest Speaker

March 21 @ 4:00 pm - 5:45 pm
Woodstock Public Library,
6008 S.E. 49th
Portland, OR 97206 United States
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March 21st will be our Spring meeting with both groups meeting together. Please join us for a talk by Attorney Matthew Serres on Housing Rights for people with disabilities. Matt will speak to us on this topic and take questions that we may have for him. We will be meeting at a new venue at a different time so please take note! March 21st, 2019 at Woodstock Public Library 6008 S.E. 49th Portland, OR. 97206 4:00–5:45 p.m. The library closes…

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“CMT and Balance Training” with Dr. Steven Baker, Neurologist

March 23 @ 10:00 am - 12:00 pm
Victoria Park Senior Centre,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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Join us for the first CMTA meeting of 2019! Dr. Baker will be at our meeting to present “CMT and Balance Training” — don’t miss this fun and informative meeting. We will also talk about upcoming meetings for this year as well as the WALK.  Thanks for joining us!

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Central Florida CMTA March Meeting

March 23 @ 11:00 am - 1:00 pm
Haines City Public Library,
111 N. 6th Street
Hains City, FL 33344 United States
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We hope you can join us for the next meeting of the Central Florida CMTA Branch!  Have you found a nifty gadget for dealing with your CMT?  Please bring your gadget and/or great ideas to the next meeting.  I look forward to sharing what I have discovered works for me and I hope you will share with the group what you have discovered.  We will also talk about what is new with the CMTA and get to know others with…

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Toronto CMTA Branch Meeting

March 23 @ 1:00 pm - 3:00 pm
St. Lawrence on the Park Condominium,
65 Scadding Avenue
Toronto, Ontario M5A 4L1 Canada
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Please join us for a Toronto, ON CMTA Branch “Meet-N-Greet” meeting where we will catch up, share CMTA updates and talk about the upcoming year. We hope to see you there!

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ALL ABOUT OUR CMTA with Jeana Sweeney, CMTA Director of Development

March 23 @ 2:00 pm - 5:00 pm
St Martin’s EpiscopalChurch,
3110 Ashford Dunwoody Road
Atlanta, GA 30319 United States
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Jeana Sweeny

This is a “can’t miss” opportunity to hear and be heard while gaining valuable insights into the work of the CMTA, including STAR and promising treatments in the pipeline. Jeana Sweeney, a natural relationship builder, is responsible for overseeing the core development activities and fundraising strategies of the organization to ensure delivery of the highest quality mission services to the CMTA community. A dedicated, passionate leader and communicator, Jeana has previously held multiple senior positions at the CMTA and brings…

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MGH Center of Excellence for CMT Presentation

March 27 @ 6:00 pm - 8:00 pm
Smiches Building 3rd Floor Room 3110,
185 Cambridge Street
Boston, MA, MA 02114 United States
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The first Boston CMTA Branch meeting of the year is scheduled for Wednesday, March 27 from 6-8PM. Please join us for a presentation from the CMTA Center of Excellence at Mass General Hospital. Dr. Reza Seyedsadjadi, MD and Ken Cornell, CO, FAAOP will lead the presentation and answer questions regarding CMT disease, progression, orthotics, and research projects taking place at MGH. We hope you can join us for this special meeting!

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Naples, FL CMTA Branch Meeting

March 27 @ 7:00 pm - 8:30 pm
Naples Community Hospital Downtown,
350 7th Street N.
Naples, FL 34102 United States
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I’d like to open this next meeting up to you the Branch members- so bring a question or problem you have in coping with CMT and I or the other members will share their experience. I also plan to show the latest CMTA webinar “Patients as Partners in Research “ by the CMTA featuring many of the CMTA board members and researchers. Check the CMTA web site if there are any other webinars you would like to see and let…

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March 2019 CMTA Branch Meeting

March 30 @ 9:00 am - 12:00 pm
Trocaire College,
6681 Transit Rd
Williamsville, NY 14221 United States
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You are invited to CMTA Buffalo Branch Guest Speaker Event Saturday, March 30, 2019 9am – 12pm Trocaire College 6681 Transit Rd Williamsville, NY 14221 This campus is located in Russell’s Steak House Plaza on Transit Rd within minutes of the NYS Thruway exit 49. We will be having 1 guest speaker. Lyndsay Raasch-Burns – GeneDX: Genetic Testing Specialist This event is free but we ask that you register so we can prepare for enough seating, refreshments, and information packets for…

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Greenville, SC CMTA Branch – Special Guest Speaker

March 30 @ 10:00 am - 12:00 pm
St. Francis Women & Family East Side,
125 Commonwealth Dr, Entrance C Room 301
Greenville, SC 29615 United States
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Laurel BIO Pic

Please join us as we welcome special guest speaker, Laurel Richardson, CMTA Director of Community Outreach. Laurel will be here to share STAR research updates as well as 2019 community programs and event highlights. We will also have time for Q & A at the end of the meeting. We hope you can join us for this fun and informative first meeting in 2019!

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April 2019

CMTA Westchester Meeting Rescheduled to April 6, 2019

April 6 @ 10:00 am - 12:00 pm
Blythdale Children’s Hospital,
95 Bradhurst Ave
Valhalla, NY 10595 United States
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CMTA Friends, We have been able to reschedule the March meeting which was canceled due to bad weather. The next Westchester CMTA Branch meeting will be held on April 6, 2019. It will be held at BLYTHEDALE CHILDREN’S HOSPITAL, Valhalla, New York, 10:00-NOON. We have exciting news to share about our 2019 fundraiser. Looking forward to seeing you. All my best, BEVERLY

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DFW Branch Meeting

April 6 @ 10:00 am - 12:00 pm
Compass Center,
4201 Pool Road
Grapevine, TX 76051 United States
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Please join us for our first DFW CMTA Branch meeting of 2019!  We will welcome guest speaker, Laurel Richardson, CMTA Director of Community Outreach.  Laurel will share a STAR research update and we will hear about all the ways in which patients can be involved in the research process.  We will also talk about the CMTA’s community and education events happening in 2019.  There will also be plenty of time for Q & A. This meeting will also give us a chance…

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Denver Area, CO CMTA Branch April 13, 2019 meeting notice

April 13 @ 10:00 am - 11:30 am
Faith Lutheran Church,
17701 W 16th Ave
Golden, CO 80401 United States
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The Denver Area, CO CMTA Branch will be meeting on Saturday, April 13, 2019, from 10:00 – 11:30 “Fall seven times, get up eight.” -Japanese Proverb Meeting location is Faith Lutheran Church, 17701 W 16th Ave in Golden. The church is 1.4 miles off of 6th Ave (using Johnson Rd.) and is very easy to reach. If you need any clarification on directions or have any questions, call Dick at (303) 988-5581. He will steer you right. Please join us…

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April meeting

April 13 @ 1:00 pm - 3:00 pm
University of Washington Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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IMG_7939

SAVE THE DATE! Check back soon, more information to come….

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Pittsburgh CMTA Branch Meeting

April 13 @ 1:00 pm - 3:00 pm
King’s Family Restaurant (Meeting Room),
580 McClelland Road
Canonsburg, PA 15317 United States
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Please join us for our first branch meeting of 2019. We will discuss the branch schedule for this year, including the May branch meeting, the Walk-4-CMT in September and selecting an advisory board speaker for our year-end meeting in November. It’s also a great way to connect with others in Southwestern PA & surrounding areas with CMT and share resources and experiences. Anyone interested may order food and beverages from the menu at your own expense. Hope to see you…

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Inaugural Meeting of the Newbury NH CMTA Branch

April 20 @ 11:00 am - 1:00 pm
Tracy Memorial Library,
304 Main Street
New London , NH 03257 United States
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Come join us for our first meeting of the Newbury/New London NH area CMTA Branch!  This will be a great opportunity to meet other individuals with CMT and talk about what type of speakers we would like to have at meetings this year. We will also share updates from the CMTA and learn about the upcoming community and education opportunities. We hope you’ll join us for this very special first meeting!

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Speaker – TBD

April 27 @ 10:00 am - 12:00 pm
Victoria Park Seniors Centre,
150 Albert Street West
Fergus, Ontario N1M 1X2 Canada
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Upcoming CMTA Meeting: Speaker – TBD Stay Tuned!

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“Who Dunnit?” CMTA Fundraiser

April 28 @ 1:00 pm - 4:00 pm
Scuttlebutt Brewing – Taproom,
3314 Cedar St
Everett, WA 9801 United States
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What to Expect: Once you arrive at the venue, you’ll be transported (figuratively) to our Masquerade Ball! Please choose any place to sit, enjoy some appetizers, order a drink (they have beer, wine and Root Beer they make themselves). The two actors will come around and talk with the guests, and will choose a few people to become “suspects” (don’t worry, this is completely voluntary, you can choose to be just a spectator). This will also be a good time…

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Columbus CMTA Branch Guest Speaker – Douglas Eck

April 28 @ 1:30 pm - 3:00 pm
Columbus Main Library Meeting Room 3A,
96 S Grant Ave
Columbus, OH 43215 United States
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douglas eck

Join us April 28th from 1:30-300 at the Columbus Main Library Meeting Room 3A to hear from guest speaker, Douglas Eck. Douglas Eck is currently a neurological physical therapist at The Ohio State University Wexner Medical Center, working in the outpatient setting with a wide variety of neurological diagnosis. He is a Board Certified Neurological Clinical Specialist and alumnus of The OSU Neurological Residency Program. Douglas will be joining us to speak about physical therapy, exercise and new treatments for…

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May 2019

Guest speaker: Dr. Gonzalez, Orthopedic Surgeon specializing in CMT

May 4 @ 10:00 am - 12:00 pm
The Hanger Clinic,
2219 E 7th St
Charlotte, NC 28204 United States
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Please join us for a wonderful guest speaker! Tyler Gonzalez, MD, is a Orthopaedic Foot and Ankle Surgeon at Wake Orthopaedics. He comes highly recommended by one of our very own branch members among other people. Dr. Gonzalez has an extensive resume, background, and training and he is excited to speak to our group. He will be presenting on different foot and ankle surgical options and when to brace and/or have surgery. We are planning for a lot of question…

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May Branch Meeting

May 14 @ 6:30 pm - 7:30 pm
Maine Medical Center- Dana Center Classroom 10,
22 Bramhall St
Portland, ME 04102 United States
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Portland Branch

SAVE THE DATE! Check back soon, more information to come…

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June 2019

The 2019 Oxford Funathlon

June 1 @ 9:00 am - 3:00 pm
Robert Morris Inn,
314 N Morris St
Oxford, MD 21654 United States
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Tee Off for CMT

June 3 @ 11:30 am - 5:00 pm
The Elkridge Club,
6100 N Charles St
Baltimore, MD 21212 United States

The CMTA is a fully accredited 501(C)(3) non-profit and the leading organization dedicated to developing treatments, and ultimately a cure, for Charcot-Marie-Tooth, a painful and disabling disease. Charcot-Marie-Tooth, known as CMT, affects more than 2.8 million people worldwide. That’s one in every 2,500 Americans living with this debilitating, medically incurable disease that attacks the peripheral nerves in the body. Symptoms of CMT may include muscle atrophy in the legs and arms, foot drop leading to frequent tripping and falling, debilitating fatigue,…

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Speaker – TBD

June 22 @ 10:00 am - 12:00 pm
Victoria Park Senior Centre,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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megaphone-vector-889137

Upcoming CMTA Meeting: Speaker – TBD Stay Tuned!

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July 2019

July Meeting

July 13 @ 1:00 pm - 3:00 pm
University of Washington Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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IMG_7939

SAVE THE DATE! Check back soon, more information to come….

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September 2019

September Branch Meeting

September 10 @ 6:30 pm - 7:30 pm
Maine Medical Center- Dana Center Classroom 3,
22 Bramhall St
Portland, ME 04102 United States
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Portland Branch

SAVE THE DATE! Check back soon, more information to come…

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5th Annual Nature Walk 4 CMT

September 21 @ 9:00 am - 1:00 pm
Long Hunter State Park,
2910 Hobson Pike
Hermitage , TN 37076 United States
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2018 walk phot

SAVE THE DATE!! Please mark your calendars and join us for our 5th annual CMTA Fundraiser in September. Hope to see you there! 5th Annual Nature Walk 4 CMT Saturday, September 21, 2019 at 9:00 AM Long Hunter State Park, Couchville Trail 2910 Hobson Pike Hermitage, TN 37076 Join our family and friends in our 5th year of awareness and raising funds for research for a rare condition called Charcot-Marie-Tooth Disorder (CMT). For more information contact…. Bridget Sarver at bdsarver81@gmail.com…

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9th Annual Walk for CMT – Fergus Fundraiser

September 29 @ 9:30 am - 11:30 am
Victoria Park,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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The 9th Annual Walk for Charcot Marie Tooth (CMT) Disease – Fergus Fundraiser – Sunday, September 29th @ 9:30am at Victoria Park, Fergus (150 Albert Street). The event is to educate those around us about CMT and help to support families and others who are faced with this disease but ultimately, to help find a cure! CMT is the most commonly inherited neuropathy in the world affecting 1 in 2,500 people worldwide totaling an estimated 2.8 million people. The 2-5…

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October 2019

October Meeting

October 12 @ 1:00 pm - 3:00 pm
University of Washington Plaza Cafe,
1959 NE Pacific St
Seattle, WA 98195 United States
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IMG_7939

SAVE THE DATE! Check back soon, more information to come….

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November 2019

“How Digisplints Can Help Your CMT” – Digisplints

November 30 @ 10:00 am - 12:00 pm
Victoria Park Seniors Centre,
150 Albert Street West
Fergus, Ontario N1M1X2 Canada
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Please join us to learn about how these splints can help those with CMT in everyday life! Taken from the www.digisplints.ca website: “If you, or someone you know, has to wear a splint every day for the rest of your life to slow down or stop the progression of deviation caused by Arthritis, or any other affliction that affects the movement of your fingers, or that causes pain to your fingers or that causes hypermobility of the finger joints, then…

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March 2019

March 18 @ 12:40 pm
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