For an overview on how to manage neuropathic pain, please read “Managing Neuropathic Pain” by Dr. Steven Scherer: Managing_Neuropathic_Pain_Dr_Steven_Scherer.pdf
Is there a link between the degeneration of my joints and CMT?
I have recurring, pulsating electrical shock-type pain in various areas of my feet. It occurs about three to four times a month and lasts at least 24 hours with a zapping pain every 30 to 60 seconds. I cannot sleep during this time period and I am exhausted afterwards. I take amitriptyline (25 mg at night), which has helped a little.
I was recently diagnosed with CMT following referral to an orthopedist for multiple stress fractures in my foot. I have osteoporosis (-3.5) and began Fosamax treatment. I am now experiencing pain in my legs, particularly my right leg (which had the stress fractures of the foot). Sometimes I feel like needles are all over my legs, numbness in my right leg, and a low-grade ache in my right leg about two inches above my ankle. Sometimes my hands hurt a little. I have never experienced these pains before. I am losing muscle in my hands. Could Fosamax have a neurotoxic effect? If so, could I use Evista?
- alendronate: arthralgia (joint pain); bone pain; musculoskeletal pain; myalgia (muscle pain)
- risedronate: arthralgia; myalgia
- raloxifene: muscle cramps; myalgia
You need to discuss your symptoms with your neurologist, so that together you can best decide on the appropriate therapy for you.
What medications are most commonly prescribed for pain due to CMT? My husband has tried Baclofen, Neurontin, and tramadol so far for pain and none have helped at all. He was prescribed hydrocodone for a tooth problem and found it minimized his CMT pain more than anything else he has tried so far. Does it make sense that the hydrocodone worked for CMT pain and is it prescribed to CMT patients for that purpose?
What causes calf cramps in CMT? What can be done about the cramping?
As for cramp relief, our CMT experts suggest drinking tonic water. It contains small amounts of quinine, which has been known to alleviate cramps.